ArticleMedicine, health care, and philosophy2026
It's you it's about! Exploring existential aspects on quality of life with myasthenia gravis.
Article in Medicine, health care, and philosophy, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
2 citing papers in PubMed.
- On the Concept of Existential Disease.Health care analysis : HCA : journal of health philosophy and policy · 2026Article
- Article
Corrections and comments
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Authors and funding
2 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
This article is grounded in a phenomenological and autoethnographic approach, with the neurologist's remark, It's you it's about!, serving as an existential starting point. The aim of this text is to explore quality of life as an existential challenge and opportunity when living with the chronic illness myasthenia gravis, drawing on lived experience and existential philosophy. Through three existential anecdotes based on the first author's experiences with myasthenia gravis, the tension between the body's limitations and the patient's desire to continue living meaningfully, as well as the role of the clinician in supporting the patient's process, is illuminated. Each anecdote is followed by a philosophical reflection - from glimpse to resonance - which deepens the exploration of the complex dimensions of quality of life. The article examines key themes such as; Running, existential positioning, and holding on to quality of life; The stoic trust that sustains a patient's quality of life; and The restoration of clarity and direction for quality of life - one that is not measured, but felt, held, and sustained in relation. By exploring these dimensions, the article proposes a shift from traditional, measurable outcomes to a broader understanding of quality of life that transcends physical symptoms.
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.