Evidence map›Paper›PMID 41442252›Full record

ArticleJournal of neuromuscular diseases2026

Exploring psychosocial experiences in clinically stable generalised Myasthenia Gravis: A thematic analysis.

Ellie Maycock, Victoria Selby, Michael Hanna, Francesco Muntoni, Gita Ramdharry

Abstract read
In one paragraph

Article in Journal of neuromuscular diseases, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Ellie MaycockInstitute of Neurology, University College London, London, UK.ORCID 0009-0008-6669-0733
Victoria SelbyDubowitz Centre for Neuromuscular Diseases, Great Ormond Street Hospital, London, UK.
Michael HannaInstitute of Neurology, University College London, London, UK.
Francesco MuntoniInstitute of Child Health, University College London, London, UK.
Gita RamdharryInstitute of Neurology, University College London, London, UK.ORCID 0000-0001-9344-0301

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Myasthenia Gravis (MG) is a chronic autoimmune neuromuscular condition that significantly impacts patients' lives. Whilst psychosocial challenges are increasingly recognised as important in understanding the lived experience of patients, insight into these experiences during periods of clinical stability remains underexplored. This qualitative study explores the psychological and social aspects of living with MG through thematic analysis of semi-structured interviews with eight adults from a specialist MG care clinic in London, all considered clinically stable for at least three months. Data were derived from participants initially interviewed about their day-to-day experience of physical symptoms to inform development of a symptom monitoring tool. As psychosocial themes emerged strongly but remained unanalysed, this paper presents a secondary analysis focusing on psychosocial themes. Three overarching themes emerged: (1)

Indexed as

Coping SkillsEmotionsMyasthenia GravisSelf ConceptAdultAgedCognitionFemaleHumansInterviews as TopicMaleMiddle AgedQualitative ResearchUncertaintyYoung Adultchronic illnessemotional wellbeingmyasthenia gravispsychosocialqualitativethematic analysis

Identifiers

PMID41442252
PMCPMC13434943

What OpenQuestion holds

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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.