Evidence map›Paper›PMID 41439473›Full record

ArticleInternational journal of cancer2026

Development and psychometric properties of a general cancer stigma scale.

Stephen M Kimani, Gita Suneja, Agatha Bula, Chaorong Wu, Abhilasha Khatri, Nehal Bakshi, Olivia R Hanson, Aparna Mangadu, Mercy Tsidya, Melissa A Stockton and 2 more

Abstract read
In one paragraph

Article in International journal of cancer, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.

0numbers the graph read from it
0cells of the map it votes in
3citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

3 citing papers in PubMed.

  1. Article
  2. Article
  3. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

12 authors.

Stephen M KimaniDepartment of Medicine, University of North Carolina at Chapel Hill, Chapel Hill, North Carolina, USA.
Gita SunejaDepartment of Radiation Oncology, University of Utah, Salt Lake City, Utah, USA.
Agatha BulaUNC Project Malawi, Lilongwe, Malawi.
Chaorong WuDivision of Epidemiology, University of Utah, Salt Lake City, Utah, USA.
Abhilasha KhatriHonors College, University of Utah, Salt Lake City, Utah, USA.
Nehal BakshiHonors College, University of Utah, Salt Lake City, Utah, USA.
Olivia R HansonSchool of Medicine, University of Utah, Salt Lake City, Utah, USA.
Aparna MangaduDepartment of Population Health Sciences, University of Utah, Salt Lake City, Utah, USA.
Mercy TsidyaUNC Project Malawi, Lilongwe, Malawi.
Melissa A StocktonDepartment of Psychiatry, University of Pennsylvania School of Medicine, Philadelphia, Pennsylvania, USA.
Brandon A KnettelDuke University School of Nursing.
Melissa H WattDepartment of Population Health Sciences, University of Utah, Salt Lake City, Utah, USA.

Funding

UTAH REGIONAL CANCER CENTERP30CA042014 · NCI · UTAH STATE HIGHER EDUCATION SYSTEM--UNIVERSITY OF UTAH · PI Jared P Rutter · 1986 to 2026
$72.6M
CTSA UM1 Program at University of UtahUM1TR004409 · NCATS · UTAH STATE HIGHER EDUCATION SYSTEM--UNIVERSITY OF UTAH · PI RACHEL HESS, Jennifer Juhl Majersik · 2023 to 2026
$21.9M
The road to recovery: An assessment of patient-reported quality of life among cancer survivors in Malawi.U54CA254564 · NCI · UNIV OF NORTH CAROLINA CHAPEL HILL · PI DITTMER, DIRK P · 2020 to 2024
$6.1M
Cancer Treatment Disparities in the HIV Population: Exploring the Impact of HIV on Physician and Patient Decision-MakingK08CA228631 · NCI · UNIVERSITY OF UTAH · PI SUNEJA, GITA · 2018 to 2022
$1.2M
Improving HIV and Depression Outcomes by Reducing HIV-Mental Illness Stigma in Malawi: a pilot effectiveness-implementation trialK01MH130226 · NIMH · UNIV OF NORTH CAROLINA CHAPEL HILL · PI Melissa Ann Stockton · 2022 to 2026
$883k
Ben B. and Iris M. Margolis FoundationNCATS NIH HHS UM1 TR004409NCI NIH HHS K08 CA228631NCI NIH HHS P30 CA042014NCI NIH HHS U54 CA254564NIH HHS 3P30CA042014-33S5NIH HHS 3U54CA254564-02S1NIH HHS K01MH130226NIH HHS K08CA228631NIH HHS UM1TR004409NIMH NIH HHS K01 MH130226
6 · The paper itself

Abstract

Cancer stigma negatively impacts diagnosis, quality of life, and survival outcomes, yet stigma reduction efforts are hindered by the lack of a valid and universal scale to measure cancer stigma. This study aimed to develop and validate a global cancer stigma scale, the Cross-Cultural Oncology Measure for Perception and Awareness of Stigma Scale (COMPASS), which measures internalized, anticipated, and enacted stigma. The scale was developed using mixed methods in two phases: (1) feedback from experts and people with cancer on an initial pool of items, and (2) psychometric validation with people with cancer. Data were collected from two cancer centers in Salt Lake City, Utah, USA, and Lilongwe, Malawi. We examined the scale's initial psychometric properties, including item-total correlation, reliability, factorial validity, and construct validity. Initial qualitative interviews informed the generation and refinement of 50 items, which were then administered to 209 individuals with cancer. Psychometric analysis reduced the scale to 28 items distributed across three stigma domains: anticipated (8 items), internalized (8 items), and enacted (12 items). The refined scale demonstrated satisfactory psychometric properties, with confirmatory factor analysis supporting a three-factor model fit (CFI = 0.859, RMSEA = 0.112, SRMR = 0.063) and strong reliability (Cronbach's alpha: 0.92 to 0.97). Validity was confirmed through strong correlations with related constructs. COMPASS offers a reliable, valid, and cross-culturally applicable tool to measure the magnitude and impact of cancer stigma globally and facilitate the evaluation of stigma reduction interventions.

Indexed as

NeoplasmsPsychometricsSocial StigmaAdultAgedFemaleHumansMaleMiddle AgedQuality of LifeReproducibility of ResultsSurveys and Questionnairescancerglobal oncologypsychometric scalestigmasurvivorship

Identifiers

PMID41439473
PMCPMC12904632

What OpenQuestion holds

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LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.