Evidence map›Paper›PMID 41432947›Full record

ArticleJAMA dermatology2026

Health System Experiences and Care Engagement in Latine Patients With Hidradenitis Suppurativa.

Yanel Hernandez, Nathaly Gonzalez, Raveena Ghanshani, Herbert B Castillo Valladares, Erin H Amerson, Haley B Naik, Jennifer L Hsiao, Jennifer James, Sara L Ackerman, Aileen Y Chang

Abstract readMulticenter Study
In one paragraph

Article in JAMA dermatology, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Yanel HernandezUniversity of California, San Francisco School of Medicine, San Francisco.
Nathaly GonzalezMedical College of Wisconsin, School of Medicine, Milwaukee.
Raveena GhanshaniKeck School of Medicine, University of Southern California, Los Angeles.
Herbert B Castillo ValladaresDepartment of Dermatology, University of California, San Francisco, School of Medicine, San Francisco.
Erin H AmersonDepartment of Dermatology, University of California, San Francisco, School of Medicine, San Francisco.
Haley B NaikDepartment of Dermatology, University of California, San Francisco, School of Medicine, San Francisco.
Jennifer L HsiaoDepartment of Dermatology, University of Southern California, Los Angeles.
Jennifer JamesDepartment of Social and Behavioral Sciences, University of California, San Francisco School of Nursing, San Francisco.
Sara L AckermanDepartment of Social and Behavioral Sciences, University of California, San Francisco School of Nursing, San Francisco.
Aileen Y ChangDepartment of Dermatology, University of California, San Francisco, School of Medicine, San Francisco.

Funding

Multilevel factors influencing racial, ethnic, and socioeconomic disparities in hidradenitis suppurativaK23AR082918 · NIAMS · UNIVERSITY OF CALIFORNIA, SAN FRANCISCO · PI Aileen Yenting Chang · 2023 to 2026
$702k
NIAMS NIH HHS K23 AR082918
6 · The paper itself

Abstract

Importance: Latine patients with hidradenitis suppurativa (HS) are reported to experience more severe disease and longer delays to diagnosis compared with White patients with HS. Objective: To assess the implications of health care system factors in HS care experiences for Latine patients. Design, Setting, and Participants: From June 2024 through March 2025, this qualitative study recruited English- and Spanish-language preferring Latine adults diagnosed with HS from dermatology clinics at 2 academic medical centers and 2 county hospitals in California. Deidentified audio recordings were transcribed and translated from semistructured interviews conducted by a bilingual Latine interviewer. Main Outcomes and Measures: After transcripts were coded, a thematic analysis was conducted to develop themes that captured the range of participants' experiences, attitudes, behaviors, and beliefs related to receiving health care for HS and implementing HS care plans throughout their HS care journey, including the time before they received care from their current dermatologist. Results: Among the 24 Latine patients included in the analysis, the median (IQR) age was 37.5 (32.75-44.25) years, 17 (71%) were female, 11 (46%) preferred Spanish, and 19 (79%) had Hurley stage 2 or 3 disease. Three themes were developed. First, unaddressed wound care and pain management burdens patients with self-directed care, with 2 subthemes: (1) insufficient guidance for patients' wound care and pain management and (2) self-directed care in response to limited health care system support for pain management and wound care creates personal burden. Second, perceived discrimination during dermatology visits leads to avoidance of care. Third, patient-centered care remains a challenge with phone or video interpreter-mediated communication. Conclusions and Relevance: In this study, many Latine participants with HS experienced unaddressed wound care and pain management needs, perceived discrimination, and challenges with interpreter-mediated communication during care with a dermatologist. Interventions are needed to prioritize wound care and pain management in multidisciplinary care plans and optimize patient-centered HS care.

Indexed as

Delivery of Health CareHidradenitis SuppurativaHispanic or LatinoAdultCaliforniaFemaleHumansMaleMiddle AgedQualitative ResearchWhite

Identifiers

PMID41432947
PMCPMC12728727

What OpenQuestion holds

Textmetadata
LicenceTDM
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.