ArticleBrain and behavior2025
Social Support, Self-Management Behaviors, and Coping Styles of Patients With Wilson's Disease: A Quantitative Empirical Research.
Article in Brain and behavior, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.
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Who cites it
2 citing papers in PubMed.
- Latent profiles of kinesiophobia and associated factors in patients with rheumatoid arthritis: a cross-sectional study.Frontiers in medicine · 2026Article
- Social Support, Self-Management Behaviors, and Coping Styles of Patients With Wilson's Disease: A Quantitative Empirical Research.Brain and behavior · 2025Article
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Authors and funding
9 authors.
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Abstract
purposeBased on Roy's Adaptation Model, this study explores the relationship between social support, coping styles, and self-management behaviors in patients with Wilson's disease (WD), as well as the underlying mechanisms.
methodsA cross-sectional survey was conducted among 230 WD patients from a tertiary hospital using the Social Support Rating Scale, the Simplified Coping Style Questionnaire, and the Chronic Disease Self-Management Study Scale. Structural equation modeling was employed to analyze the pathways between variables.
resultsThe total scores for social support, coping styles, and self-management behaviors were 36.03 ± 7.71, 50.44 ± 10.95, and 37.76 ± 12.05, respectively. Social support was positively correlated with self-management behaviors (r = 0.386) and positive coping (r = 0.578) and weakly correlated with negative coping (r = -0.170). Positive coping was positively correlated with self-management behaviors (r = 0.519), while negative coping was negatively correlated (r = -0.308). Structural equation modeling indicated that coping style partially mediates the relationship between social support and self-management (β = 0.199, p < 0.001).
conclusionSocial support directly enhances self-management behaviors in patients with WD and indirectly promotes them by fostering positive coping styles, supporting Roy's adaptation model as a theoretical basis for intervention development. IMPLICATIONS FOR PRACTICE: Effective self-management in WD patients requires a combination of factors, including the use of social resources, reducing negative perceptions of the disease, and adopting positive coping strategies. IMPACT: Based on Roy's adaptation model, to explore the self-management behaviors of patients with hepatolenticular degeneration and their influencing factors. We identified the correlation between self-management behaviors and social support and coping styles in patients with Wilson's disease. This study provides a theoretical basis for improving the self-management behaviors of patients with Wilson's disease and lays a foundation for further empirical research.
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