Co-production as the ultimate goal; an incentive or discouragement?

A Bangiri, A Horobin, J Baker, S Pszczolkowski, S Thust, P S Morgan

Registry-linked trialAbstract readLetter

In one paragraph

Article in Research involvement and engagement, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06466720 (Measuring and Mapping Cognitive Decline After Brain Radiosurgery), which is not on this map. Cited by 1 paper.

0numbers the graph read from it

0cells of the map it votes in

1citing papers in PubMed

–field-weighted citation impact

1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

NCT06466720 active not recruitingnot on this map

Measuring and Mapping Cognitive Decline After Brain Radiosurgery: a Pilot Study

TypeobservationalSponsorUniversity of NottinghamRan2024 to 2026Enrolled80ConditionsBrain Metastases, Meningiomas, Stereotactic Radiosurgery, Cognitive DeclineArmsNeurocognitive testing, Quality of Life questionnaire, Stereotactic radiosurgery

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

Reducing tokenism in patient and public involvement by integrating the Gothenburg person-centred care framework, relational bridges and impact log - a co-produced position paper.Research involvement and engagement · 2026
Article

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

A BangiriUniversity of Nottingham, Nottingham, UK. anna.bangiri1@nottingham.ac.uk.ORCID http://orcid.org/0000-0001-6242-9476

A HorobinUniversity of Nottingham, Nottingham, UK.ORCID http://orcid.org/0000-0002-7120-4612

J BakerPatient and Public Involvement Contributor, Doncaster, UK.

S PszczolkowskiUniversity of Nottingham, Nottingham, UK.ORCID http://orcid.org/0000-0002-5859-3190

S ThustUniversity of Nottingham, Nottingham, UK.ORCID http://orcid.org/0000-0001-5136-6000

P S MorganUniversity of Nottingham, Nottingham, UK.ORCID http://orcid.org/0000-0002-5870-1446

Funding

Wellcome Trust 223508/Z/21/Z

6 · The paper itself

Abstract

Patient and public involvement (PPI) in research is a requirement in most of the western world. Funders routinely require extensive PPI plans from applicants and co-production is seen as the ultimate goal. The ladder of participation is unidimensional and does not account for the circumstances of the patients and their family members. Patients, especially those suffering from cancer, can be vulnerable and frail. Their disease and its unpredictable progression might prevent them from deep and lengthy involvement in research projects. Flexibility and adaptability is required from the research team to ensure that patients' are involved to the level they want and are able to. Consequently, co-production might not be feasible in certain cases. The impact of the involvement of contributors should be regarded in its own merit, taking into account their circumstances, even if co-production is not achieved.

Indexed as

Cognitive declinePatient and public involvementPPIQuality of life questionnaireSRSStereotactic radiosurgery

Identifiers

PMID41430325

DOI10.1186/s40900-025-00812-1

PMCPMC12720434

What OpenQuestion holds

Textmetadata

LicenceCC BY

Read underepoch 390

Registered trials

NCT06466720ClinicalTrials.gov

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.