Evidence map›Paper›PMID 41424748›Full record

ArticleJournal of patient experience2025

Improving Healthcare Efficiency and Patient Outcomes Through Proactive Insight to Action: A Sickle Cell Disease Case Example.

David Rubin, Elizabeth Brooks, Rachel Biblow, Kim Smith-Whitley

Abstract read
In one paragraph

Article in Journal of patient experience, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

David RubinChildren's Hospital of Philadelphia, Philadelphia, PA, USA.
Elizabeth BrooksChildren's Hospital of Philadelphia, Philadelphia, PA, USA.
Rachel BiblowChildren's Hospital of Philadelphia, Philadelphia, PA, USA.ORCID https://orcid.org/0009-0001-5496-0838
Kim Smith-WhitleyChildren's Hospital of Philadelphia, Philadelphia, PA, USA.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

As healthcare systems grapple with simultaneous challenges of patient engagement, access for services, and growing clinician burnout, we share an approach to quality improvement focused on equipping integrated care teams with methods for proactive insight and action to manage patients. This approach offers a way to deliver outcomes that value-based care arrangements look to achieve, and which can alleviate clinician burnout and improve satisfaction across care teams. We illustrate our experience with a program managing patients with sickle cell disease in Southeast Pennsylvania that has delivered improved outcomes, including improvements around the provision of important medication therapies and completion of annual screening tests, for a population that historically faces many health inequities. These tools and workflows are still widely in use today. Improving the care of a patient longitudinally requires an approach across the continuum of care and inevitably requires a team-based model with a multidisciplinary emphasis to better engage patients outside of office visits and relieve burden on frontline clinicians.

Indexed as

clinician-patient relationshipclinician/staff engagementpatient engagementpopulation healthquality improvementsocial determinants of healthteam communicationvalue-based care/purchasing

Identifiers

PMID41424748
PMCPMC12717353

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.