Evidence map›Paper›PMID 41422219›Full record

ArticleResearch involvement and engagement2025

A case study of partnership in practice: challenges and insights in the development of an academic-community coalition "The Migrant Health Community Research Network".

Jessica Carter, Felicity Knights, Yusuf Ciftci, Kathryn Mackey, Eltayeb Hassan, Ada Jusic, Isra Al-Sharabi, Anna Deal, Nuria Sanchez Clemente, Alison Crawshaw and 11 more

Abstract read
In one paragraph

Article in Research involvement and engagement, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

21 authors.

Jessica CarterMigrant Health Research Group, Institute for Infection and Immunity, School of Health and Medical Sciences, City St Georges, University of London, London, UK. jcarter@sgul.ac.uk.
Felicity KnightsMigrant Health Research Group, Institute for Infection and Immunity, School of Health and Medical Sciences, City St Georges, University of London, London, UK.
Yusuf CiftciMigrant Health Community Research Network, London, UK.
Kathryn MackeyMigrant Health Research Group, Institute for Infection and Immunity, School of Health and Medical Sciences, City St Georges, University of London, London, UK.
Eltayeb HassanMigrant Health Community Research Network, London, UK.
Ada JusicMigrant Health Community Research Network, London, UK.
Isra Al-SharabiMigrant Health Community Research Network, London, UK.
Anna DealMigrant Health Research Group, Institute for Infection and Immunity, School of Health and Medical Sciences, City St Georges, University of London, London, UK.
Nuria Sanchez ClementeMigrant Health Research Group, Institute for Infection and Immunity, School of Health and Medical Sciences, City St Georges, University of London, London, UK.
Alison CrawshawMigrant Health Research Group, Institute for Infection and Immunity, School of Health and Medical Sciences, City St Georges, University of London, London, UK.
Sally E HaywardMigrant Health Research Group, Institute for Infection and Immunity, School of Health and Medical Sciences, City St Georges, University of London, London, UK.
Darlington FaijueMigrant Health Research Group, Institute for Infection and Immunity, School of Health and Medical Sciences, City St Georges, University of London, London, UK.
Nathaniel AsprayMigrant Health Research Group, Institute for Infection and Immunity, School of Health and Medical Sciences, City St Georges, University of London, London, UK.
Natalie ElkhierLondon School of Hygiene and Tropical Medicine, London, UK.
Philippa HarrisMigrant Health Research Group, Institute for Infection and Immunity, School of Health and Medical Sciences, City St Georges, University of London, London, UK.
Rosita Chia-Yin LinMigrant Health Research Group, Institute for Infection and Immunity, School of Health and Medical Sciences, City St Georges, University of London, London, UK.
Beatriz MoraisMigrant Health Research Group, Institute for Infection and Immunity, School of Health and Medical Sciences, City St Georges, University of London, London, UK.
Sarah TizzardMigrant Health Research Group, Institute for Infection and Immunity, School of Health and Medical Sciences, City St Georges, University of London, London, UK.
Oumnia BouaddiMigrant Health Research Group, Institute for Infection and Immunity, School of Health and Medical Sciences, City St Georges, University of London, London, UK.
Farah SeedatMigrant Health Research Group, Institute for Infection and Immunity, School of Health and Medical Sciences, City St Georges, University of London, London, UK.
Sally HargreavesMigrant Health Research Group, Institute for Infection and Immunity, School of Health and Medical Sciences, City St Georges, University of London, London, UK. shargrea@sgul.ac.uk.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundParticipatory research (PR) approaches are increasingly prioritised globally, particularly in the UK, where many funders have emphasised meaningful collaboration with those with lived experience to improve health research relevance, translation and impact. Despite this, marginalised groups, such as migrants, remain underrepresented in research, perpetuating health inequities. Migrants, who comprise 16% of the UK population, face systemic barriers to engagement, including distrust, hierarchical academic structures, and lack of inclusivity. PR approaches offer a collaborative framework for empowering migrant voices, balancing research and action, and fostering trust to address these disparities. This case study describes the development of the Migrant Health Community Research Network (MHCRN), a collaboration between migrant community groups, individuals, academics and health professionals from the Migrant Health Research Group, City St Georges University of London (MHRG). Aim MHRG sought to develop a sustainable model for engaging migrants in health research through a co-created network addressing power imbalances and ensuring inclusivity.

methodsMHRG adopted PR principles, reflecting on the groups collective experience of prior engagement practices and systematically reviewing best practices. A five-phase approach was used: (1) defining agenda and aspirations through group reflection; (2) identifying concerns and challenges through internal reflection and community consultation; (3) conducting community exploratory workshops with co-facilitation; (4) establishing initial network structure based on collectively agreed principles; (5) co-developing a lived experience advisory panel.

findingsThe process has resulted in the following outputs: the “Migrant Health Community Research Network” (MHCRN) with guiding principles (equity, diversity, respect, decolonisation, empowerment, community), a network steering group (LEAP, Lived Experience Advisory Panel), community-based collaborations embedding migrant voices at all research stages, capacity building through training and peer researcher roles, and award-winning projects. Key challenges identified include structural inequalities, funding limitations, and institutional barriers. Opportunities emerged around trust-building, shared leadership, and sustainable relationship development.

conclusionsWhile the MHCRN represents an important step in embedding meaningful collaboration, challenges persist. This initiative highlights the need for systemic change in academia to support equitable partnerships and inform similar innovative initiatives. By prioritizing non-tokenistic engagement and co-production, the MHCRN sets a foundation for sustained, impactful collaboration to address health inequities and inform policy and practice. Many health research projects fail to involve people they aim to help, especially marginalised groups such as migrants. This often results in research that is neither relevant nor useful. We recognised that the way we have worked with people with lived experience of migration could be improved. Our aim was to create a way to work together long-term so that migrant voices are heard and acted on from the development of research ideas all the way to the delivery and sharing of findings. We decided after talking to many researchers, migrants, community organisations and health care professionals that a migrant health research network that brought together all these voices through relationship building and creative ways of working and sharing ideas would be a good way to do this. We established the Migrant Health Community Research Network (MHCRN) which brings together people living in the United Kingdom with lived experience of migration from all over the world, healthcare professionals working in the National Health Service (NHS) and researchers from City St George’s University of London to improve migrant health. Our network was built step-by-step, starting with open conversations with migrants, healthcare professionals and researchers about challenges they had experienced in involving migrant communities in research and how these could be overcome. We then ran a workshop to shape our vision and agreed on shared principles. The network aims to be long-term, inclusive, and led by those with lived migration experience. Although there are ongoing challenges, this process has taught us valuable lessons about working together in a meaningful way.

Indexed as

Co-productionHealth inequitiesMigrant healthParticipatory researchPatient engagementResearch priorities

Identifiers

PMID41422219
PMCPMC12729176

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.