Evidence map›Paper›PMID 41420175›Full record

ArticleBMC palliative care2025

Implementing a new approach to enhance palliative care for people with dementia in Aruba, Bonaire, and Curaçao: a mixed-methods study.

Jesper M A Biesmans, Sascha R Bolt, Sanne P C M Vergouwen, Rosa Léon, Evert L Piar, Henna Winklaar, Tessa de Haas, Jos M G A Schols, Daisy J A Janssen, Judith M M Meijers

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Article in BMC palliative care, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
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0citing papers in PubMed
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1 · What the graph read from it

What it found

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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

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No citing paper in PubMed yet.

4 · The record

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5 · Who and what money

Authors and funding

10 authors.

Jesper M A BiesmansCare and Public Health Research Institute, Department of Health Services Research, Maastricht University, Maastricht, The Netherlands. jesper.biesmans@maastrichtuniversity.nl.
Sascha R BoltTranzo, Tilburg School of Social and Behavioral Sciences, Tilburg University, Tilburg, The Netherlands.
Sanne P C M VergouwenCare and Public Health Research Institute, Department of Health Services Research, Maastricht University, Maastricht, The Netherlands.
Rosa LéonHealthy Ageing Consultancy, Oranjestad, Aruba.
Evert L PiarFundashon Alzheimer Bonaire, Kralendijk, Bonaire, Sint Eustatius and Saba.
Henna WinklaarFundashon Alzheimer Bonaire, Kralendijk, Bonaire, Sint Eustatius and Saba.
Tessa de HaasHospice Hamiëd, Willemstad, Curaçao.
Jos M G A ScholsCare and Public Health Research Institute, Department of Health Services Research, Maastricht University, Maastricht, The Netherlands.
Daisy J A JanssenCare and Public Health Research Institute, Department of Health Services Research, Maastricht University, Maastricht, The Netherlands.
Judith M M MeijersCare and Public Health Research Institute, Department of Health Services Research, Maastricht University, Maastricht, The Netherlands.

Funding

The Netherlands Organization for Health Research and Development 10200012110004
6 · The paper itself

Abstract

introductionThe Caribbean islands Aruba, Bonaire, and Curaçao (ABC islands) face challenges in providing palliative care for people with dementia. The Desired Dementia Care Towards End of Life (DEDICATED) approach empowers healthcare professionals to provide person-centered palliative care to individuals with dementia. This study examines healthcare professionals' needs for improving palliative care and their experiences with implementing the DEDICATED approach, as well as its impact on palliative care for people with dementia on the ABC islands. METHODOLOGY: A consortium was established with stakeholders from the ABC islands to facilitate the training of 72 healthcare professionals in implementing the DEDICATED approach in these locations. A needs assessment questionnaire, referred to as the 'DEDICATED questionnaire', was completed to explore the needs for palliative care improvement on the ABC islands. For each island, a focus group was organized to gather feedback from healthcare professionals about their experiences with implementing the DEDICATED approach. A descriptive thematic analysis was performed.

resultsIn total, 49 healthcare professionals completed the DEDICATED questionnaire, which indicated high needs for improvement in aspects such as familiarization with a person with dementia and conducting advance care planning. Twenty healthcare professionals participated in the focus groups. Five main themes were identified, related to the implementation of the DEDICATED approach in the islands' sociocultural and organizational aspects, the approach's impact on palliative dementia care, and the necessity of adapting the DEDICATED approach to local contexts. The results revealed that talking about death and palliative care is considered taboo in ABC island culture. Healthcare professionals expressed a need for further refinements to stimulate the implementation of the approach. The DEDICATED approach increased awareness about providing person-centered care and stimulated healthcare professionals to more proactively discuss the palliative care needs of people with dementia and their family caregivers.

conclusionThe DEDICATED approach showed added value for healthcare professionals in the context of the ABC islands. The approach encouraged proactive discussions about palliative and end-of-life care. However, cultural and contextual aspects, such as religion, could pose barriers to the implementation of the approach. Further refinements are needed to align the DEDICATED approach with the context of the ABC islands, thereby stimulating its implementation.

trial registrationNot applicable.

Indexed as

DementiaPalliative CareAdultFemaleFocus GroupsHealth PersonnelHumansMaleMiddle AgedNeeds AssessmentQualitative ResearchSurveys and QuestionnairesCaribbeanCo-creationCultural sensitivityDementiaPalliative carePerson-centered careQuality improvementTraining intervention

Identifiers

PMID41420175
PMCPMC12831258

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.