Evidence map›Paper›PMID 41415901›Full record

ArticlePalliative care and social practice2025

Community engagement in public health palliative care: A comparative ethnographic study of two culturally distinct compassionate communities in Canada.

Émilie Lessard, Isabelle Marcoux, Serge Daneault, Lise Jean, Cynthia Lapointe, Dale Weil, Ghislaine Rouly, Libby Sallnow, Allan Kellehear, Antoine Boivin

Abstract read
In one paragraph

Article in Palliative care and social practice, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

10 authors.

Émilie LessardInstitute of Psychology, Faculty of Social and Political Sciences, Université de Lausanne, Switzerland.ORCID https://orcid.org/0000-0001-9040-5797
Isabelle MarcouxFaculty of Health Science, University of Ottawa, ON, Canada.ORCID https://orcid.org/0000-0003-1652-0150
Serge DaneaultDepartment of Family Medicine and Emergency Medicine, Faculty of Medicine, Université de Montréal, QC, Canada.
Lise JeanCommunauté Compatissante Montréal, QC, Canada.
Cynthia LapointeMontreal Institute for Palliative Care, Teresa Dellar Palliative Care Residence, Kirkland, QC, Canada.
Dale WeilMontreal Institute for Palliative Care, Teresa Dellar Palliative Care Residence, Kirkland, QC, Canada.
Ghislaine RoulyCanada Research Chair in Partnership with Patients and Communities, Centre de recherche du centre hospitalier de l'Université de Montréal (CRCHUM), QC, Canada.
Libby SallnowMarie Curie Palliative Care Research Department, University College London, UK.
Allan KellehearSocial Work, Education and Community Wellbeing, Northumbria University, Newcastle, UK.ORCID https://orcid.org/0009-0001-5399-4075
Antoine BoivinDepartment of Family Medicine and Emergency Medicine, Faculty of Medicine, Université de Montréal, QC, Canada.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Background: Compassionate communities are part of an international public health movement aiming to address social determinants of death by fostering supportive environments. Yet, empirical research on community engagement in this field is still limited, particularly the influence of local contexts on engagement patterns. Objectives: This study aimed to identify effective engagement practices and contextual factors influencing the development and sustainability of compassionate communities. Research design and method: A comparative ethnographic method was used to examine community engagement processes in two culturally distinct compassionate communities in Montréal (Canada): Centre-Sud and West Island. Data collection included participant observation, semistructured interviews, and logbooks. Informed by developmental evaluation, the analysis was guided by a thematic lens approach and the Ecology of Engagement framework. Results: Two distinct, context-sensitive paths to community engagement emerged, shaped by the sociocultural realities of each setting. In Centre-Sud, a grassroots, community-led approach focused on shared leadership and building trust fostered a resilient network that achieved sustainability through the creation of an independent nonprofit organization. In contrast, West Island's institutionally led strategy was a pragmatic response to navigate contextual barriers like preexisting community distrust, achieving sustainability by embedding the initiative within the lead organization via a permanent staff role. Conclusion: This comparative ethnography demonstrates that success is not defined by a single model but by adapting engagement strategies to local dynamics of trust and power. It highlights that while community-led approaches can foster deep ownership, institutionally led strategies can provide a crucial pathway to sustainability in contexts facing systemic barriers. The study offers a practical framework for practitioners and key lessons for developing evidence-based policy to support compassionate communities in diverse settings.

Indexed as

community engagementcomparative studycompassionate communitiesethnographyevaluationpublic health palliative care

Identifiers

PMID41415901
PMCPMC12708986

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.