ArticleHealth psychology : official journal of the Division of Health Psychology, American Psychological Association2026
Chronic pain lived experience of pediatric sickle cell disease: A qualitative study.
Article in Health psychology : official journal of the Division of Health Psychology, American Psychological Association, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
2 citing papers in PubMed.
- I-STRONG: an integrative, multicomponent treatment approach for chronic pain in pediatric sickle cell disease.Blood advances · 2026Trial
- Coping Skills, Hospitalizations, and Hopefulness in Youths with Sickle Cell Disease Treated in a Regional Outpatient Comprehensive Pediatric Center.Children (Basel, Switzerland) · 2026Article
Corrections and comments
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Authors and funding
5 authors.
Funding
Abstract
objectiveThis study aimed to describe the child- and parent-centered lived experience of chronic sickle cell pain and its management among children and adolescents living with sickle cell disease (SCD). A secondary aim was to examine culturally relevant treatment preferences to inform clinically meaningful end points for nonpharmacological behavioral treatments and identify facilitators and barriers to behavioral treatments to enhance the feasibility and acceptability of future chronic sickle cell pain treatment programs.
methodParticipants were 14 dyads of children and adolescents with SCD and their parents. A qualitative, participatory approach was used to conduct individual semistructured interviews with iterative refinement of the interview guide, coding, and analysis throughout.
resultsChild and parent experiences described three overarching themes: (a) the experience of chronic sickle cell pain and its management, including the negative impact and increased stress from frequent school absences, hospitalizations, peer socialization, and changes in autonomy with age; (b) the impact on parent and family functioning, including parenting stress, needing community support, protecting each other from impacts of pain, and parents feeling guilt for the genetics of SCD; and (c) preferences for treatment and interventions, including expertise and trust in treating providers and skill acquisition to support living a full, valued life.
conclusionsChildren with chronic SCD pain and their caregivers conceptualize children's pain experiences as complex, dynamic, and shaped by the surrounding context. Adapting interventions to address the unique individual and family experiences and needs may enhance behavioral pain interventions, treatment engagement, and optimize the health of children with chronic SCD pain. (PsycInfo Database Record (c) 2025 APA, all rights reserved).
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