ArticleJournal of autism and developmental disorders2025
Navigating Through the Path of Struggle and Building Resilience of Adversity: Lived Experiences of Mothers Having Children With Autism in the West Bank, Palestine.
Article in Journal of autism and developmental disorders, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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Abstract
purposeAutism is a neurodevelopmental disorder that is globally increasing in prevalence. It presents significant challenges, particularly for mothers of children with autism. While extensive research has examined the lived experiences of these mothers in various global contexts, the gap remains in understanding this phenomenon in Palestine, particularly in the West Bank. This study aims to explore the lived experiences of mothers of children with ASD, shedding light on their struggles, challenges, and coping mechanisms.
methodsA qualitative phenomenological hermeneutics design was employed, recruiting sixteen mothers purposively including mothers from various age groups, educational backgrounds, and residential areas across different districts in the West Bank to ensure a diverse sample. Data were collected using in-depth, semi-structured interviews between February and April 2024. The interviews were analyzed using a phenomenological hermeneutics approach to uncover and interpret the meaning of the mothers’ experiences.
resultsThe lived experience of mothers of children with Autism was conveyed in ten subthemes. These subthemes were formulated in condensed descriptions to assemble these three themes: difficult and overwhelming experiences, caregiving challenging and burden, and building resilience.
conclusionThere is a great need for more comprehensive healthcare and social systems that prioritize the unique needs of families with children with autism in the West Bank. Policies and programs should focus on increasing autism awareness, improving access to specialized services, and providing psychological and financial support to mothers and caregivers.
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