Evidence map›Paper›PMID 41390930›Full record

ArticleJournal of the National Cancer Institute2026

Susan G. Komen's ShareForCures: a patient-engaged, nationwide breast cancer research registry.

Jerome Jourquin, James C Dickerson, Emily G Marks, Jessica Epps, Kimberly Sabelko, Allison W Kurian, Melissa L Bondy

Abstract read
PubMed Publisher
In one paragraph

Article in Journal of the National Cancer Institute, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Jerome JourquinSusan G. Komen, Dallas, TX, United States.ORCID 0000-0002-7468-1166
James C DickersonDepartment of Medicine (Oncology), Stanford University School of Medicine, Stanford, CA, United States.ORCID 0000-0002-8935-2939
Emily G MarksSusan G. Komen, Dallas, TX, United States.
Jessica EppsSusan G. Komen, Dallas, TX, United States.ORCID 0000-0003-1966-1557
Kimberly SabelkoSusan G. Komen, Dallas, TX, United States.
Allison W KurianDepartment of Medicine (Oncology), Stanford University School of Medicine, Stanford, CA, United States.ORCID 0000-0002-6175-9470
Melissa L BondyDepartment of Epidemiology and Population Health, Stanford University School of Medicine, Stanford, CA, United States.ORCID 0000-0002-0278-414X

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

ShareForCures is a newly launched and growing dataset, crowdsourced from participants, that comprises self-reported, clinical, and genomics data. The dataset seeks to advance breast cancer research by expanding patient participation in research and accelerating discoveries. It is designed to (1) provide opportunities for individuals who have or have had breast cancer to participate in research, (2) create a longitudinal cohort that represents the diversity of individuals diagnosed with breast cancer, and (3) facilitate collaboration among researchers from various backgrounds and institutions to improve breast cancer care and outcomes for all. ShareForCures is a user-friendly, direct-to-consumer, online platform that collects demographic, genetic, and clinical information from or on behalf of breast cancer research participants. All adults in the United States with a breast cancer diagnosis are eligible. As of September 30, 2025, 1327 participants had enrolled. The platform aims to enroll 2500 diverse participants by 2027, with a long-term goal of reaching 10 000 participants in the next decade. With ShareForCures, Susan G. Komen is engaging a diverse population of individuals with breast cancer, including persons from groups typically underrepresented in research, to drive discoveries that benefit everyone. With the first research projects already using the dataset, ShareForCures has the potential to become a unique national platform for generating insights and real-world data that will drive patient-centered research.

Indexed as

Biomedical ResearchBreast NeoplasmsPatient ParticipationRegistriesFemaleHumansUnited States

Identifiers

PMID41390930

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.