SynthesisChild's nervous system : ChNS : official journal of the International Society for Pediatric Neurosurgery2025
Strengths and limitations of healthcare transition programs for patients with spina bifida: a systematic review.
Synthesis in Child's nervous system : ChNS : official journal of the International Society for Pediatric Neurosurgery, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
1 citing paper in PubMed.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundDue to the complex needs of patients with spina bifida, many pediatric clinics have adopted a multidisciplinary approach, which allows the patient to see multiple specialists in one setting. However, patients with spina bifida require ongoing care throughout their lifetime, and many patients experience interruptions in care when they transition to adulthood; therefore, many centers have also begun to develop programs to streamline the transition process. The goal of this review is to summarize the existing healthcare transition programs for patients with spina bifida that have been described in the literature.
methodsA systematic review was conducted using PubMed, Scopus, and SpringerLink. Articles were screened first by title and abstract, followed by a full-text review. The following data were extracted from included articles: number of respondents, type of study, intervention, the type of survey (if applicable), and outcomes. The Triple Aim framework (population health, experience of care, and utilization and cost) was used to assess outcomes.
resultsOverall, 1,288 articles were screened and 15 were included in this review. 13 assessed individual patients, while 2 performed a clinic/program-level analysis. The included studies had a mean of 52 subjects per study (range 13-162 subjects). 14 studies evaluated population health outcomes, 13 evaluated the experience of care, and 7 evaluated utilization and cost outcomes. 12 studies utilized a survey or interview-based methodology, while the other 3 utilized quantitative data obtained through a retrospective chart review. Most transition programs have shown improved independence and self-management, but require more discussion regarding mental health, communication with adult care providers, community resources and insurance, and transportation. Future efforts should focus on psychosocial and practical aspects of care.
Indexed as
Identifiers
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.