ArticleInternational journal of qualitative studies on health and well-being2025
Addressing and supporting the unmet needs of sarcoma survivors: a qualitative study.
Article in International journal of qualitative studies on health and well-being, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers, 1 of them a synthesis that pooled it.
What it found
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The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Who cites it
2 citing papers in PubMed, 1 synthesis or guideline pooled it.
- Psychosocial Impact of Sarcoma: Challenges and Adaptation, a Meta-Synthesis.Psycho-oncology · 2026Pooled it
- Beyond the Wound: Cancer Education for Psychological Recovery After Extremity Sarcoma Surgery.Journal of cancer education : the official journal of the American Association for Cancer Education · 2026Article
Corrections and comments
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Authors and funding
3 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
purposeThe primary aim of this qualitative study was to explore how sarcoma survivors experienced communication with and support from healthcare professional during their outpatient long-term follow-up care at a university hospital.
methodsThe study employed an exploratory qualitative design, using a phenomenological and hermeneutic approach. Data were collected through semi-structured interviews with 28 sarcoma patients treated at a dedicated sarcoma centre. The material was analysed using thematic analysis.
resultsParticipants reported a high degree of trust in healthcare professionals and overall satisfaction with their oncological care. However, many expressed that physicians could improve their ability to take a more holistic view and to acknowledge how cancer and its treatment had affected patients' health and quality of life. All participants appreciated receiving a structured checklist that helped them identify and communicate challenges and unmet needs. Furthermore, they expressed a need for more comprehensive and continuous information about potential side effects and late complications throughout the treatment and follow-up trajectory.
conclusionThis study highlights that sarcoma survivors value clear, consistent, and holistic communication about late effects during follow-up care. To strengthen patient-centred communication, healthcare professionals should engage in open dialogue and clarify shared responsibilities related to long-term health management and rehabilitation.
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