ArticleBMC public health2025
"It's a secret for the family…it never goes out because they will spread it.": Navigating secrecy as a tool against HIV stigma among children living with HIV/AIDS and their caregivers in Uganda.
Article in BMC public health, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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Abstract
Adolescents living with HIV/AIDS and their families continue to feel the brunt of the HIV pandemic in low-resource settings such as Uganda. However, little is still known about how adolescents and their families use their internal resources to deal with HIV-associated stigma. Using the Social Positioning theory, we qualitatively explore how adolescents and their caregivers use secrecy as a tool to deal with HIV stigma within their families and communities. We analyzed qualitative data from adolescents (10–14 years) and caregivers participating in an HIV-stigma reduction intervention in the greater Masaka region of Uganda. The study recruited 89 adolescent and their caregivers from 9 comparable healthcare clinics. A total of 17 dyads participated in in-depth interviews that explored their experiences with HIV-related stigma and its perceived impact on their lives and family well-being. We found that adolescents and their caregivers position themselves within collective selective secrecy as a tool to deal with stigma. This is demonstrated under the following themes: navigating complex family relationships, navigating secrecy with neighbors, and dealing with community members. Future public health efforts should assess the effectiveness of this mechanism while developing long-term effective anti-stigma campaigns for HIV-affected communities in Uganda.
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