SynthesisWomen's health (London, England)
A participatory systematic review on human rights and the birth of a child with albinism in sub-Saharan Africa.
Synthesis in Women's health (London, England). The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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25 authors.
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Abstract
backgroundThe period surrounding birth is a crucial and determining time for many women, particularly for those who give birth to a child with albinism (CWA) due to the stigma, discrimination, and threat to safety they immediately encounter, altering their life trajectory.
objectivesTo synthesize existing evidence on the human rights surrounding the birth of a baby with albinism in sub-Saharan Africa.
designWe conducted an integrative review through a critical participatory approach. Our review question was; What are the experiences surrounding the birth of a CWA for the mother and father and their carers in sub-Saharan Africa? DATA SOURCES AND
methodsOur study included 35 academic and 47 gray literature articles and reports (for a total of 82 sources) from 9 academic databases and hand searches with relevant sources. We employed a convergent integrated approach to data synthesis and thematic analysis methods.Our study included 82 academic and gray literature articles and reports from 9 academic databases and hand searches with relevant sources.
resultsDrawing on African-based perspectives, together with strengths-based, trauma- and violence-informed care, we analyzed the complex lived experiences of mothers who have given birth to a CWA and explored potential sites for transformative change. We identified four themes: (1)
conclusionOur review revealed not only a matrix of structural violence that characterizes the experience of mothers but also protective factors that become visible with a strengths-based framing. REGISTRATION: Open Science Framework (OSF) registration, DOI https://doi.org/10.17605/OSF.IO/83KMC.
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