Evidence map›Paper›PMID 41375076›Full record

ArticleCancers2025

Exploring the Coordination of Cancer Care for Teenagers and Young Adults in England and Wales: BRIGHTLIGHT_2021 Rapid Qualitative Study.

Elysse Bautista-Gonzalez, Rachel M Taylor, Lorna A Fern, Julie A Barber, Jamie Cargill, Rozalia Dobrogowska, Richard G Feltbower, Laura Haddad, Nicolas Hall, Maria Lawal and 5 more

Abstract read
In one paragraph

Article in Cancers, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

15 authors.

Elysse Bautista-GonzalezCentre for Nurse, Midwife and AHP Led Research (CNMAR), University College London Hospitals NHS Foundation Trust, London NW1 2PG, UK.ORCID 0000-0002-8925-4706
Rachel M TaylorCentre for Nurse, Midwife and AHP Led Research (CNMAR), University College London Hospitals NHS Foundation Trust, London NW1 2PG, UK.ORCID 0000-0002-0853-0925
Lorna A FernCancer Clinical Trials Unit, University College London Hospitals NHS Foundation Trust, London NW1 2PG, UK.ORCID 0000-0003-4821-8466
Julie A BarberDepartment of Statistical Science, University College London, London WC1E 6BT, UK.
Jamie CargillManaged Service Network for Children and Young People with Cancer in Scotland, Kings Cross Hospital, Dundee DD3 8EA, UK.ORCID 0009-0001-8575-6856
Rozalia DobrogowskaRapid Research Evaluation and Appraisal Lab (RREAL), Department of Targeted Intervention, University College London, London WC1E 6BT, UK.
Richard G FeltbowerLeeds Institute for Data Analytics, School of Medicine, University of Leeds, Leeds LS2 9JT, UK.ORCID 0000-0002-1728-9408
Laura HaddadPatient Representative, BRIGHTLIGHT Young Advisory Panel (YAP), UK.
Nicolas HallRapid Research Evaluation and Appraisal Lab (RREAL), Department of Targeted Intervention, University College London, London WC1E 6BT, UK.
Maria LawalPatient Representative, BRIGHTLIGHT Young Advisory Panel (YAP), UK.
Martin G McCabeDivision of Cancer Sciences, The University of Manchester, Manchester M13 9PL, UK.ORCID 0000-0002-5138-0707
Sophie MonizRapid Research Evaluation and Appraisal Lab (RREAL), Department of Targeted Intervention, University College London, London WC1E 6BT, UK.ORCID 0000-0002-1594-7323
Louise SoanesTeenage Cancer Trust, London WC1V 7AA, UK.ORCID 0000-0002-8918-7371
Dan P StarkLeeds Institute of Medical Research at St James's, Leeds LS9 7TF, UK.
Cecilia Vindrola-PadrosRapid Research Evaluation and Appraisal Lab (RREAL), Department of Targeted Intervention, University College London, London WC1E 6BT, UK.

Funding

National Institute for Health and Care Research NIHR201438National Institute for Health and Care Research NIHR304515
6 · The paper itself

Abstract

backgroundCommissioning of 'joint care' across teenage and young adult (TYA) principal treatment centres (PTC) and regional designated hospitals was introduced to enable cancer care closer to home, while providing support through the TYA multidisciplinary team. We aimed to explore the processes being used to enable inter-organisational collaboration under joint care models through rapid ethnography.

methodsHealthcare professionals in TYA PTCs in England and Wales between June 2022 and December 2023 were identified by the TYA lead in each PTC as delivering TYA cancer care. Semi-structured interviews were conducted virtually or by telephone based on the structuration model of collaboration proposed by D'Amour. Data were analysed against the model through framework analysis.

resultsOur study highlighted variation across the different dimensions of inter-organisational collaboration. We found that healthcare professionals delivering TYA cancer care were working toward a shared goal but this was not always achieved. Social interaction between professionals was required to develop relationships and trust, but opportunities for social interaction were not regularly available. Processes for sharing information were not streamlined, so there were instances when information could not be shared between organisations. Interventions to achieve coordinated care, such as an outreach team, supported the delivery of joint care but these were not available in every region. While there were some levels of leadership within aspects of services, there were limited examples nationally or across geographical regions, which hindered the development of coordinated care.

conclusionsCoordination of care is mostly developing; however, the shared vision and goals dimension did achieve full active collaboration. The implementation of a service specification will address regional leadership requirements, but resources are required to extend the delivery of interventions to support coordination and collaboration, allowing the commissioned model of care to be delivered safely.

Indexed as

BRIGHTLIGHTcancercollaborationcoordinationleadershipmodel of careteenagersyoung adultsyoung people

Identifiers

PMID41375076
PMCPMC12691236

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.