Evidence map›Paper›PMID 41372942›Full record

ArticleBMC palliative care2025

Friends and neighbours as non-kin caregivers of seriously ill patients at the end of life: a scoping review of experiences, individual capacities, support needs and services.

Laura Stemme, Katharina Doll-Nikutta, Maria Heckel, Franziska A Herbst

Abstract readScoping Review
In one paragraph

Article in BMC palliative care, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Prevalence and Social Support Networks of Underrepresented Caregivers: Sandwich, Millennial, Non-kin, and Male Caregivers.Journal of applied gerontology : the official journal of the Southern Gerontological Society · 2026
    Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Laura StemmeInstitute for General Practice and Palliative Care, Hannover Medical School, Carl-Neuberg-Strasse 1, Hannover, 30625, Germany.ORCID http://orcid.org/0009-0004-6309-4902
Katharina Doll-NikuttaDepartment of Prosthetic Dentistry and Biomedical Materials Science, Hannover Medical School, Hannover, Germany.ORCID http://orcid.org/0000-0002-4885-9821
Maria HeckelDepartment of Palliative Medicine, Friedrich Alexander University Erlangen Nuremberg Faculty of Medicine, University Hospital Erlangen, Erlangen, Germany.ORCID http://orcid.org/0000-0001-6212-2562
Franziska A HerbstInstitute for General Practice and Palliative Care, Hannover Medical School, Carl-Neuberg-Strasse 1, Hannover, 30625, Germany. herbst.franziska@mh-hannover.de.ORCID http://orcid.org/0000-0003-2602-9277

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundThe number of older individuals in need of care is projected to increase in the coming years. As support from family members is becoming increasingly limited, often due to geographical distance, non-kin caregivers, such as neighbours, friends, and acquaintances, are assuming an increasingly significant role in providing support. The present scoping review aimed to identify, describe and synthesise existing evidence on the experiences, individual capacities and support needs of informal non-kin caregivers of patients at the end of life, as well as the support services available to them.

methodsThe review followed the methodological framework of Arksey and O'Malley. A search was conducted in four electronic databases (CINAHL, PsycInfo, PubMed, Web of Science Core Collection) on 10 October 2022 using a highly sensitive search strategy, and updated on 8 January 2025. Reference lists of the included studies were also hand-searched.

resultsTwo authors independently reviewed the titles and abstracts of 2,931 articles and screened 128 full texts. Seven articles met the inclusion criteria, and a further three articles were identified through hand searching. The analysis revealed seven overarching themes: (1) the duration and extent of non-kin caregiving, (2) caregiving relationships, (3) enabling care at home, (4) support wishes and needs, (5) modes of support, (6) non-kin caregivers as 'hidden' caregivers and (7) caregiving burden. Notable research gaps were identified, particularly regarding the low visibility of friends and neighbours in informal care, the lack of clear differentiation from family caregivers and the limited access to appropriate support and palliative care services.

conclusionsThe findings showed that informal non-kin caregivers of seriously ill patients at the end of life remain under-recognised, despite the significant responsibilities they undertake. Future research is needed to improve access to tailored support and to distinguish their experiences from those of family caregivers.

Indexed as

CaregiversFriendsSocial SupportTerminal CareHumansCaregiver burdenCaregiversFriendsPalliative careSocial supportTerminal care

Identifiers

PMID41372942
PMCPMC12801842

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.