Evidence map›Paper›PMID 41370780›Full record

Trial reportJCO clinical cancer informatics2025

Patient Portal Engagement in Oncology: Results From the NU IMPACT Study in a Large Health Care System.

Kyle M Nolla, Maja Kuharic, Nicola Lancki, Callie L Walsh-Bailey, Ann Marie Flores, Sofia F Garcia, Roxanne E Jensen, Yingbao Wang, Quan Mai, Ambrosine M Mercer and 7 more

Abstract readRandomized Controlled Trial
In one paragraph

Trial report in JCO clinical cancer informatics, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

17 authors.

Kyle M NollaNorthwestern University Feinberg School of Medicine, Chicago, IL.ORCID 0000-0002-8481-4655
Maja KuharicNorthwestern University Feinberg School of Medicine, Chicago, IL.ORCID 0000-0003-3696-9086
Nicola LanckiNorthwestern University Feinberg School of Medicine, Chicago, IL.ORCID 0000-0003-4809-1960
Callie L Walsh-BaileyNorthwestern University Feinberg School of Medicine, Chicago, IL.ORCID 0000-0002-1417-5130
Ann Marie FloresNorthwestern University Feinberg School of Medicine, Chicago, IL.ORCID 0000-0001-7781-1555
Sofia F GarciaNorthwestern University Feinberg School of Medicine, Chicago, IL.ORCID 0000-0003-3300-385X
Roxanne E JensenOutcomes Research Branch, Division of Cancer Control and Population Sciences, National Cancer Institute, Bethesda, MD.ORCID 0000-0002-4632-1091
Yingbao WangNorthwestern University Feinberg School of Medicine, Chicago, IL.
Quan MaiNorthwestern University Feinberg School of Medicine, Chicago, IL.
Ambrosine M MercerNorthwestern University Feinberg School of Medicine, Chicago, IL.ORCID 0000-0002-2725-6781
Justin Dean SmithUniversity of Utah, Salt Lake City, UT.ORCID 0000-0003-3264-8082
Alexandra M PsihogiosNorthwestern University Feinberg School of Medicine, Chicago, IL.ORCID 0000-0002-4111-1191
Kimberly A WebsterNorthwestern University Feinberg School of Medicine, Chicago, IL.ORCID 0000-0003-1495-1459
Sheetal M KircherNorthwestern University Feinberg School of Medicine, Chicago, IL.ORCID 0000-0002-3429-6378
Patricia D FranklinNorthwestern University Feinberg School of Medicine, Chicago, IL.ORCID 0000-0002-4441-0533
David CellaNorthwestern University Feinberg School of Medicine, Chicago, IL.ORCID 0000-0002-9881-4541
Betina R YanezNorthwestern University Feinberg School of Medicine, Chicago, IL.ORCID 0000-0002-1336-1265

Funding

Northwestern University Clinical and Translational Science Institute (NUCATS)UL1TR001422 · NCATS · NORTHWESTERN UNIVERSITY AT CHICAGO · PI D'AQUILA, RICHARD · 2015 to 2023
$56.8M
Implementation and Evaluation of an Expanded Bilingual Electronic Symptom Management Program across a Multi-site, Fully-integrated Comprehensive Cancer CenterUM1CA233035 · NCI · NORTHWESTERN UNIVERSITY AT CHICAGO · PI CELLA, DAVID · 2018 to 2021
$8.1M
Cancer Prevention, Control, and Survivorship Research Training ProgramT32CA193193 · NCI · NORTHWESTERN UNIVERSITY AT CHICAGO · PI Brian L Hitsman, BETINA YANEZ · 2015 to 2026
$3.8M
NCATS NIH HHS UL1 TR001422NCI NIH HHS T32 CA193193NCI NIH HHS UM1 CA233035
6 · The paper itself

Abstract

purposeElectronic patient portals can promote patient-centered care, but determinants of engagement remain underexplored in oncology. This study examines sociodemographic and clinical factors associated with engagement with four portal features, including invitations to complete patient-reported outcome (PRO) measures before appointments.

methodsSecondary analysis of the Northwestern University IMproving the Management of symPtoms during and following Cancer Treatment study, a stepped-wedge cluster randomized trial to promote symptom management using PROs in adult oncology care was performed. For each enrolled participant, we examined portal usage across 1 year.

resultsA total of 3,457 patients were enrolled between April 2020 and April 2023 from 30 Northwestern Medicine ambulatory oncology clinics. Patients were 65% female, 85% White, and 85% non-Hispanic/Latino, with a mean age of 60.8 years. Cancer diagnoses were 30% breast, 12% lymphoma, and all other types accounted for <10% of the sample. Patients accessed laboratory results most frequently (median 23 days in the year), followed by messaging (median 11 days) and physician notes (median 2 days). A total of 62.6% of patients completed at least one invited PRO. Controlling for sociodemographic factors, patient characteristics that were associated with greater engagement across three or more features included more oncology appointments, high health literacy, high anxiety, one or more severe physical symptoms, and high shared decision making with their health care team. Black race, Hispanic/Latino ethnicity, and Medicaid insurance were associated with lower portal engagement. Patients who used any other portal features were more likely to complete PROs. In contrast to other portal features, patients with at least one severe physical symptom were less likely to complete PROs (incidence rate ratio, 0.87 [95% CI, 0.81 to 0.93];

conclusionPortal use among patients with cancer varies by sociodemographic and clinical characteristics. Findings suggest a need for targeted interventions to promote equitable use among under-represented groups and promote portal-based PRO completion for patients with higher symptom burden.

Indexed as

Medical OncologyNeoplasmsPatient ParticipationPatient PortalsAdultAgedDelivery of Health CareFemaleHumansMaleMiddle AgedPatient-Centered CarePatient Reported Outcome Measures

Identifiers

PMID41370780
PMCPMC12698109

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.