Evidence map›Paper›PMID 41362069›Full record

ReviewJournal of applied research in intellectual disabilities : JARID2025

Using Individual Service Funds (ISFs) to Improve Access to Self-Directed Support for Adults With Intellectual Disabilities: A Participatory Realist Review.

Elizabeth Croot, Alice Dunning, Andrew Booth, Clare Tarling

Abstract readReview
In one paragraph

Review in Journal of applied research in intellectual disabilities : JARID, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

4 authors.

Elizabeth CrootSheffield Centre for Health and Related Research, School of Medicine and Population Health, Sheffield University, Sheffield, UK.ORCID https://orcid.org/0000-0002-3666-6264
Alice DunningSheffield Centre for Health and Related Research, School of Medicine and Population Health, Sheffield University, Sheffield, UK.
Andrew BoothSheffield Centre for Health and Related Research, School of Medicine and Population Health, Sheffield University, Sheffield, UK.ORCID https://orcid.org/0000-0003-4808-3880
Clare TarlingClare Tarling Associates, Dorchester, Dorset, UK.

Funding

National Institute for Health and Care Research NIHR151776
6 · The paper itself

Abstract

backgroundIndividual service funds (ISFs) in England aim to provide self-directed support without the challenge of procuring support and managing a budget. However, few local authorities offer ISFs and some do not offer more choice and control than a council-managed budget.

methodsThis participatory realist review followed RAMESES publication standards. We developed and refined theories using published and grey literature, expert stakeholders and personal narratives (written and video case studies).

resultsWe identified eight initial programme theories, forming a programme theory explaining how ISFs generate successful outcomes for adults with intellectual disabilities. These included: involvement in support planning; accessible budget information; flexible use of budgets; outcome-focused support planning; 'live' support plans; non-traditional support; positive risk management and trusting relationships.

conclusionOur programme theory elucidates causal pathways for successful ISF outcomes, connecting mechanisms to contextual factors. This guides ISF development and implementation and helps adults with intellectual disabilities make informed decisions about ISFs.

Indexed as

Health Services AccessibilityIntellectual DisabilityAdultEnglandHumansindividual service fundsintellectual disabilitiespersonal budgetsrealist reviewself‐directed supportsocial care

Identifiers

PMID41362069
PMCPMC12686772

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.