ArticleBMC geriatrics2025
"I tell you what it's the hardest job": the experiences of family carers providing support for people with dementia at home in the last year of life.
Article in BMC geriatrics, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
0 citing papers in PubMed.
No citing paper in PubMed yet.
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundMore people are dying at home with dementia. While there is growing recognition of the central role that family carers play when supporting people with dementia to die at home, knowledge gaps remain around how to best support them as they care for the person during the last year of life.
aimTo explore the experiences of bereaved family carers who had provided care for a person with dementia living at home in the last year of life.
designA descriptive qualitative study based on a constructivist epistemology using in-depth semi-structured interviews. Data were analysed using reflexive thematic analysis.
participantsTwenty-nine bereaved family carers who had supported a person with dementia living at home in the last year of life.
resultsCaring for a person with dementia at home in the last year of life can be emotionally, mentally, and physically overwhelming. Family carers described the challenges they faced when trying to ensure that they met the needs of the person with dementia so that they could remain at home. Three overarching themes were developed from the data: Managing end-of-life symptoms and associated conditions; Living with uncertainty; and Impacts on wellbeing.
conclusionsSupporting a person with dementia at home in the last year of life can jeopardise family carers' own health, finances, relationships, and overall wellbeing. Many felt that they had limited understanding about the prognosis of dementia and how this would impact on caring at home, leaving them feeling unsupported amidst the incredible responsibilities placed on them. Family carers would benefit from training on how to provide practical aspects care for the person with dementia in the home, as well as support when making decisions for the person with dementia towards the end-of-life.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.