Evidence map›Paper›PMID 41353373›Full record

ArticleResearch involvement and engagement2025

Co-production with marginalised workers: working with homecare workers and managers caring for people approaching end-of-life.

Zana Bayley, Cat Forward, Helene Elliott-Button, Justine Krygier, Caroline White, Mark Pearson, Liz Walker, Colin Moss, Jamilla Hussain, Paul Taylor and 3 more

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Article in Research involvement and engagement, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

13 authors.

Zana BayleyFaculty of Health Sciences, The University of Hull, Hull, HU6 7RX, UK. z.bayley@sheffield.ac.uk.
Cat ForwardHealth and Social Care Workforce Research Unit, King's College London, London, UK.
Helene Elliott-ButtonWolfson Palliative Care Research Centre, Hull York Medical School, The University of Hull, Hull, UK.
Justine KrygierWolfson Palliative Care Research Centre, Hull York Medical School, The University of Hull, Hull, UK.
Caroline WhiteWolfson Palliative Care Research Centre, Hull York Medical School, The University of Hull, Hull, UK.
Mark PearsonWolfson Palliative Care Research Centre, Hull York Medical School, The University of Hull, Hull, UK.
Liz WalkerFaculty of Health Sciences, The University of Hull, Hull, HU6 7RX, UK.
Colin MossInvolve Hull, Institute for Clinical and Applied Health Research, The University of Hull, Hull, UK.
Jamilla HussainBradford Teaching Hospitals Foundation Trust, Bradford, UK.
Paul TaylorSt Luke's Hospice, Sheffield, UK.
Jane WrayFaculty of Health Sciences, The University of Hull, Hull, HU6 7RX, UK.
Helen RobertsWolfson Palliative Care Research Centre, Hull York Medical School, The University of Hull, Hull, UK.
Miriam J JohnsonWolfson Palliative Care Research Centre, Hull York Medical School, The University of Hull, Hull, UK.

Funding

National Institute for Health and Care Research NIHR135128
6 · The paper itself

Abstract

backgroundCo-production is important due to its effectiveness in creating relevant and meaningful outputs for use in social and healthcare practice, however, frontline staff such as homecare workers (also known as aides, personal assistants or domiciliary care workers providing paid care within the home) are a key group within the social care workforce who are under-represented in this approach. Here, we report our coproduction process engaging with this workforce to develop training resources for workers providing end-of-life homecare.

aimTo co-produce training resources with homecare workers and their managers to support and educate workers delivering end-of-life homecare using evidence from our larger qualitative interview study.

methodsWe conducted a series of 12 co-production workshops with UK-based homecare workers and managers (partners) to design training resources and recommendations for homecare providers informed by research findings. We adopted the five key principles of co-production: Sharing of power; Including all perspectives and skills; Respecting and valuing knowledge; Reciprocity; and Building and maintaining relationships. A co-production advisory group of homecare workers as well as the workshop partners gave valuable oversight throughout the workshop series.

results77 partners (31 homecare workers, 46 managers) participated in 12 workshops (one face-to-face; 11 online). Our approach enabled power-sharing, inclusivity, respect, collaboration and reciprocity, relationship-building, and identification of effective flexible approaches to co-production. Specific forms of training resources were co-created. Training recommendations (content, delivery formats, access during working hours, etc.) were also developed together. Challenges were non-attendance and lack of engagement by some partners during sessions.

conclusionThese workshops are the first, to our knowledge, to successfully co-produce end-of-life care training resources with homecare workers and managers, a poorly represented workforce in co-production. Challenges included inconsistent attendance and poor engagement by a minority of partners. The five key principles of co-production enabled true engagement with the process, thereby enriching the final outputs.

Indexed as

Co-creationCo-designCo-productionHomecarePalliative careTraining

Identifiers

PMID41353373
PMCPMC12784559

What OpenQuestion holds

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LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.