Evidence map›Paper›PMID 41353191›Full record

ReviewResearch involvement and engagement2025

Conceptualizing culture change as an impact metric. A scoping review and abductive thematic analysis of culture-related outcomes from patient and public involvement in healthcare and health research.

Emil Laurberg Mogensen, Dorthe S Nielsen, Anders Valentin Johansen, Flemming Smedegaard, Jan Erik Henriksen, Lisbeth Rosenbek Minet

Abstract readReview
In one paragraph

Review in Research involvement and engagement, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Emil Laurberg MogensenDepartment of Clinical Research, University of Southern Denmark, Odense, Denmark. Emil.Laurberg.Mogensen@rsyd.dk.ORCID http://orcid.org/0009-0001-2207-0275
Dorthe S NielsenDepartment of Clinical Research, University of Southern Denmark, Odense, Denmark.
Anders Valentin JohansenResearch Unit of Geriatrics, Odense University Hospital, Odense, Denmark.
Flemming SmedegaardDepartment of Culture and Language, University of Southern Denmark, Odense, Denmark.
Jan Erik HenriksenDepartment of Clinical Research, University of Southern Denmark, Odense, Denmark.
Lisbeth Rosenbek MinetDepartment of Clinical Research, University of Southern Denmark, Odense, Denmark.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundPatient and public involvement (PPI) is increasingly integrated into healthcare and health research, yet its role in driving culture change remains poorly understood. Culture change is a complex and multifaceted concept, and it is difficult to define and evaluate. This study set out to identify culture-related outcomes of PPI across clinical, organizational, and research domains, and to develop a framework for conceptualizing culture change as an impact of strategic PPI efforts.

resultsTwenty-two studies met the inclusion criteria, yielding 132 outcomes linked to culture change. These outcomes were thematically synthesized into 15 categories and 5 subcategories and situated within a three-level structure: micro (user socialization process), meso (organizational commitment), and macro (regulatory assumptions). Using abductive thematic analysis, we developed theory across the empirical findings to develop the PPI Culture Change (PPI-CC) model – the first multi-level, empirically grounded, and theory-informed framework to conceptualize how PPI contributes to culture change in healthcare and health research.

conclusionThe PPI-CC model positions culture change as an impact of PPI in its own right. Drawing on multi-cultural and complexity-informed perspectives, it conceptualizes culture change in the context of PPI in healthcare and health research as a multidimensional, iterative, and dynamic process shaped by interaction, feedback, learning, and adaptation across micro, meso, and macro levels. The model should be viewed as a conceptual starting point rather than a practice-ready tool, and it proposes that evaluation of culture change be approached as a process of learning.

Indexed as

ComplexityCulture changeEvaluationHealthcareHealth researchOrganizational culturePatient and public involvementPPI-CC modelScoping reviewStrategic PPI

Identifiers

PMID41353191
PMCPMC12797334

What OpenQuestion holds

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LicenceCC BY-NC-ND
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.