ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2025
"We are champions": an investigation on how cancer support group propels patient advocacy, voices, education, mentorship, and support.
Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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Abstract
purposeWith over 127,000 incidents and 79,000 deaths, cancer is now officially declared a notifiable disease of public interest in Nigeria. Most cancer control efforts have targeted prevention, diagnosis, and treatment, often overlooking supportive care, survivorship, and patient-centered aspects of care. This study investigated survivors' experiences with cancer support groups (CSG), exploring their activities, effectiveness, challenges, and benefits to address these critical gaps.
methodsParticipants (N = 14) who were cancer survivors and members of a CSG were recruited. Data collection was conducted through interviews, and the data were analyzed using both inductive and deductive thematic analysis.
resultsFive key themes were identified: "[coming] together, gives us a voice" (Patients' Voice); "[we] are dying from this cancer … who will speak out for us?" (Patient Advocacy); "I feel better [that] I have more understanding of the disease" (Patient Education); "I have a mentor and … I mentor" (Peer Mentor); and "support that we draw from each other" (Peer Support). The categories illustrated the facilitators, barriers, benefits, activities, and optimism in CSGs. The results showed that CSGs could propel patient advocacy, give a voice to survivors, provide education, mentorship, and supportive care to members.
conclusionsThe findings highlight the role of CSGs in supportive care and survivorship. Establishing CSGs at cancer centers may promote patient advocacy and education and reduce abscondment. Nigeria's National Cancer Control Plan should prioritize and fund supportive care. Low- and middle-income countries should focus on engaging and collaborating with cancer patients to advance their cancer control efforts.
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