ReviewResearch involvement and engagement2025
Parents' experience of child loss during pregnancy or birth: protocol for an explorative, sequential and participative mixed-methods study.
Review in Research involvement and engagement, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT06771661 (Parents' Experience of Child Loss During Pregnancy or Birth - an Explorative, Sequential Mixed-methods Study), which is not on this map. Cited by 1 paper.
What it found
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Parents' Experience of Child Loss During Pregnancy or Birth - an Explorative, Sequential Mixed-methods Study
Who cites it
1 citing paper in PubMed.
- Needs of parents during their intrauterine or perinatal child loss - a qualitative multi-method study.BMC public health · 2026Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundInternationally, the rate of child loss during pregnancy or birth remains high. This has not only physical but also psychological implications for the parents. While much is known today about the medium- and long-term impact of such a loss, very little research is available on the experience and needs before and during intrauterine or perinatal loss. In addition, healthcare professionals feel insecure and unprepared when dealing with this specific group, which also has a lasting impact on those affected.
aimTo develop recommendations for healthcare professionals on how to deal with families before and during the intrauterine or perinatal loss of their child.
methodsAn explorative, sequential and participatory mixed-methods study will be conducted. Along its design, an affected mother is involved throughout the entire study. In detail, workshops, focus groups and narrative interviews with parents are planned. We will include parents who have lost their child during pregnancy or birth within the last 12 months and live in Germany, Austria or Switzerland. The results of the research are then translated into recommendations, which are reviewed and confirmed together with affected parents in a Delphi survey. Finally, a guideline for healthcare professionals will be developed. DISCUSSION: The co-creative design of this study enables the experience-based development of recommendations for healthcare professionals. CLINICAL
trial registrationThe study was registered in the National Library of Medicine on January 13th, 2025 with the unique ClinicalTrials.gov identifier NCT06771661 ( https://clinicaltrials.gov/study/NCT06771661 ).
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Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.