Evidence map›Paper›PMID 41345973›Full record

ReviewHuman genomics2025

Data visiting governance: a conceptual framework.

Donrich Thaldar

Abstract readReview
In one paragraph

Review in Human genomics, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

1 author.

Donrich ThaldarSchool of Law, University of KwaZulu-Natal, Mazisi Kunene Road, Glenwood, Durban, South Africa. ThaldarD@ukzn.ac.za.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

As genomic research scales globally, legal constraints such as data localization provisions in data privacy and other laws and ethical imperatives around privacy and sovereignty increasingly challenge traditional models of data sharing. Data visiting, where analysis occurs within the provider's computing environment without moving the data, offers a promising alternative, yet its governance remains underdeveloped. This article introduces the Seven-Dimensional Data Visiting Framework (7D-DVF), a structured tool for designing, assessing, and regulating data visiting systems in genomics. Building on the Global Alliance for Genomics and Health (GA4GH) data sharing lexicon, the framework disaggregates data visiting into seven adjustable dimensions: researcher autonomy, data location, data visibility, nature of the shared data, output governance, trust and control model, and auditability and traceability. Each dimension operates as a governance lever, enabling proportional, context-sensitive configurations that balance privacy, utility, and legal compliance. The article illustrates how the 7D-DVF can guide practical implementation through checklists and real-world scenarios, including institutional data control, Indigenous data sovereignty, and federated AI model training. By shifting genomic governance from reactive compliance to design-based stewardship, the 7D-DVF equips stakeholders to operationalize secure, lawful, and future-ready data sharing practices.

Indexed as

GenomicsInformation DisseminationHumansData localizationData sovereigntyFederate learningGenomic data sharingTrusted research environments

Identifiers

PMID41345973
PMCPMC12802004

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.