Observational studyFrontiers in public health2025
The Family Stress Model in families of children with rare diseases: a cross-sectional multilevel path analysis for understanding family dynamics.
Observational study in Frontiers in public health, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. It is linked to trial NCT04382820 (Psychosocial Situation of Children With Rare), which is not on this map. Not yet cited in PubMed.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Psychosocial Situation of Children With Rare (Congenital) Pediatric Surgical Diseases and Their Families
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0 citing papers in PubMed.
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Authors and funding
7 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Background: Theoretical frameworks, such as the Family Stress Model, have been evaluated in various contexts; however, there is a lack of large-scale studies specifically focusing on families of children with rare diseases. Objective: To examine the applicability of the Family Stress model within a large-scale sample of families of children with rare diseases. Methods: The potential predictors of children's mental health in a multicenter study of Results: Relevant associations were found among all variables. The multilevel model based on our data only partially supported the Family Stress Model. In our model, the quality of the parental relationship was not relevantly associated with stress and depressive symptoms. Conclusion: Our findings show that the Family Stress Model is not supported entirely in a multilevel analysis of families of children with rare diseases. Nevertheless, the results underscore the importance of focusing on alleviating parental stress, which could diminish intra-family psychopathology. Clinical trial registration: The study was registered on September 21, 2024, with the identifier number NCT04382820 at ClinicalTrials.gov.
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