ArticlePalliative medicine reports2025
Allostatic Load Borne by Caregivers of Children with Serious Conditions: Acceptability of Self-Reported Data.
Article in Palliative medicine reports, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
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Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
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Authors and funding
6 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
Background: Stress due to a child's serious medical condition affects the entire family. The cumulative stress burden ("allostatic load") has deleterious health and economic effects. Objective: Demonstrate adequate caregiver willingness to disclose health care utilization and work/school attendance. Setting/Subjects: We enrolled caregivers of well children (WC), children with medical complexity (CMC), and children receiving palliative care (PC) ( Measurements: A novel allostatic load questionnaire and the Family Appraisal of Caregiving Questionnaire for Palliative Care were used. Results: All caregivers (100% female) completed the study, with 9% of data missing. PC participants reported greater child health care appointments and admissions compared with WC and CMC. Conclusions: Caregivers will disclose sensitive information for health care research, providing evidence for subsequent, adequately powered studies to inform policy-making. While underpowered for between-group analyses, results suggest pediatricians should routinely assess caregiver burden even at well-child visits.
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