Evidence map›Paper›PMID 41318964›Full record

ArticleSociology of health & illness2026

Misunderstood, Minimised, Misrepresented: Autistic Young Adults' Experiences of Epistemic Injustices in Healthcare Interactions Around Autism.

Aino-Mari Uisma, Tuija Virkki, Minna Ylilahti

Abstract read
In one paragraph

Article in Sociology of health & illness, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Article
  2. Review
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors.

Aino-Mari UismaUniversity of Jyväskylä, Jyväskylä, Finland.ORCID 0009-0000-2898-1830
Tuija VirkkiUniversity of Jyväskylä, Jyväskylä, Finland.ORCID 0000-0002-0899-7541
Minna YlilahtiUniversity of Jyväskylä, Jyväskylä, Finland.ORCID 0000-0002-6632-9787

Funding

Suomen Vammaistutkimuksen SeuraUniversity of Jyväskylä
6 · The paper itself

Abstract

This article explores autistic young adults' experiences of epistemic injustice in healthcare interactions where autism is invoked and a subject of misaligned sensemakings. We take a particular focus on hermeneutical injustice, which refers to the difficulty of understanding and communicating one's experiences due to gaps and biases in sensemaking resources. Earlier research concerning autistic individuals from this perspective is sparse and mostly theoretical. Our study addresses this gap by conducting abductive thematic analysis on interview and questionnaire data from Finnish autistic young adults. This approach enabled us to recognise biases and hierarchies, such as neuronormativity and epistemic hierarchies, while also describing a new, paradoxical kind of hermeneutical injustice not covered by earlier research. Our results indicate how the often-intertwined forms of epistemic injustices are related to a lack of representativeness in how autism is understood as well as to how the exclusion of certain kinds of knowledge and knowers, along with the devaluations of expressive styles, impact autistic people's epistemic agency, identities and access to care. We argue for more inclusive epistemic approaches in healthcare that appreciate autistic contributions, recognise the diversity of autistic experience and expression, and challenge the reductive assumptions embedded in diagnostic and professional practices.

Indexed as

Autistic DisorderAdolescentAdultFemaleFinlandHermeneuticsHumansInterviews as TopicKnowledgeMaleQualitative ResearchSurveys and QuestionnairesYoung Adult

Identifiers

PMID41318964
PMCPMC12665047

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.