ArticleJournal of eating disorders2025
"It's never ending and overwhelmingly difficult": a mixed-methods survey of the impact of caregiving for a loved one with an eating disorder in New Zealand.
Article in Journal of eating disorders, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 3 papers.
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Who cites it
3 citing papers in PubMed.
- Letter to the Editor: "It's never ending and overwhelmingly difficult": a mixed-methods survey of the impact of caregiving for a loved one with an eating disorder in New Zealand.Journal of eating disorders · 2026Article
- Participation in the New Maudsley Model Workshops is Associated With Reductions in Caregiver Burden in Eating Disorders.European eating disorders review : the journal of the Eating Disorders Association · 2026Article
- A Novel Approach to the Involvement of Loved Ones in the Treatment of Individuals with Eating Disorders: The Family Integration Model.Behavioral sciences (Basel, Switzerland) · 2026Article
Corrections and comments
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Authors and funding
5 authors.
Funding
No grant is acknowledged in the PubMed record.
Abstract
backgroundCaregivers of people with eating disorders (EDs) often support refeeding, behavioural monitoring, and co-ordinate therapeutic and medical appointments. Available support is often focused on the person with the ED and rarely on the caregiver. This study examined the impact of caregiving in New Zealand (NZ).
methodsCurrent and previous caregivers completed an online, anonymous survey exploring their experience of caregiving and its psychological impact using the Depression, Anxiety, and Stress Scale (DASS-21), the Eating Disorders Symptom Impact Scale (EDSIS), and questions about the long-term impact of caregiving on caregivers' mental health. A comparison was made with data on Australian caregivers.
resultsCurrent caregivers reported higher levels of depression and stress than those not currently caregiving, as well as higher levels of depressive symptoms than Australian caregivers. The impact of ED symptoms were also generally higher in NZ participants compared with Australian caregivers.The perceived impact of the ED was associated with the psychological distress experienced by caregivers with greater impact being linked to more distress. Of those whose loved ones were in recovery, more than 25% experienced ongoing post-traumatic symptoms related to their caregiving experience.
conclusionNZ caregivers reported ongoing effects related to caregiving even when the person with the ED had recovered. NZ caregivers experience a high level of distress and burden that can persist once recovery is achieved. Comprehensive ED support should include interventions to improve caregivers' wellbeing.
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