ArticleInternational review of research in developmental disabilities2021
A review of the literature on siblings of individuals with severe intellectual and developmental disabilities.
Article in International review of research in developmental disabilities, 2021. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
4 citing papers in PubMed.
- 'It Feels Very Weird and Normal at the Same Time': Sibling Perceptions of Their Relationships With an Autistic Brother or Sister With Complex Care Needs.Journal of applied research in intellectual disabilities : JARID · 2025Article
- Testing a Family Conflict Intervention for Parents and Typically Developing Adolescent Siblings of Individuals with Intellectual and/or Developmental Disabilities.International journal of environmental research and public health · 2024Article
- Self-injurious behavior in individuals with intellectual and developmental disabilities: An interdisciplinary family systems review.Journal of family theory & review · 2024Article
- Scoping review: quality of life of siblings of children who are deaf and hard of hearing, have a vision or motor impairment.Frontiers in rehabilitation sciences · 2023Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
1 author.
Funding
Abstract
Siblings of individuals with severe intellectual disability are underrepresented in research, yet they are simultaneously an at-risk population and a crucial population in terms of future planning (Heller & Arnold, 2010; Rossetti & Hall, 2015). This review systematically summarizes the literature with the goals of (1) characterizing the state of the literature on this subpopulation, (2) identifying evidence for differential impacts and needs in this subpopulation as compared to the umbrella population of siblings of individuals with IDD, and (3) identifying future directions researchers should take to determine the implications of these differential impact(s), should they exist. Results suggest that the research is inconclusive in many domains, but increased likelihood of negative outcomes and increased caregiving responsibilities across the lifespan are supported. Limitations include underreporting of severity and sample biases. Implications for sibling wellbeing and future planning are discussed.
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.