Evidence map›Paper›PMID 41310992›Full record

ArticleOTJR : occupation, participation and health2026

Strengthening Community-Academic Partnerships to Enhance Care for Sickle Cell Disease.

Catherine R Hoyt, Hunter G Moore, Maya Caldwell, Jessica Kersey, Rosemary Britts, Kelly M Harris, Sonya Burnett, Courtney Watza, Allison A King

Abstract read
In one paragraph

Article in OTJR : occupation, participation and health, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Catherine R HoytWashington University School of Medicine in St. Louis, MO, USA.ORCID 0000-0002-3398-9439
Hunter G MooreWashington University School of Medicine in St. Louis, MO, USA.
Maya CaldwellWashington University School of Medicine in St. Louis, MO, USA.
Jessica KerseyWashington University School of Medicine in St. Louis, MO, USA.ORCID 0000-0001-9082-6962
Rosemary BrittsSickle Cell Association, St. Louis, MO, USA.
Kelly M HarrisWashington University School of Medicine in St. Louis, MO, USA.ORCID 0000-0002-5282-4226
Sonya BurnettWashington University School of Medicine in St. Louis, MO, USA.
Courtney WatzaCareSTL Health, St. Louis, MO, USA.
Allison A KingWashington University School of Medicine in St. Louis, MO, USA.ORCID 0000-0002-1951-6176

Funding

(SCANS) Sickle Cell Anemia Neurodevelopmental Screening - Mentoring and Research in Patient Oriented ResearchK24HL148305 · NHLBI · WASHINGTON UNIVERSITY · PI Allison A King · 2019 to 2026
$706k
Early Identification Of Developmental Delay Among Infants And Toddlers With Sickle Cell DiseaseK23HL161328 · NHLBI · WASHINGTON UNIVERSITY · PI Catherine Rose Hoyt · 2023 to 2026
$554k
NHLBI NIH HHS K23 HL161328NHLBI NIH HHS K24 HL148305
6 · The paper itself

Abstract

Sickle cell disease (SCD) affects approximately 100,000 Americans, predominantly those of African descent, yet care coordination between academic medical centers and community organizations remains limited. To identify strategies for strengthening community-academic partnerships to enhance care delivery for children with SCD through focus groups with community partners in a midwestern metropolitan area. Using qualitative descriptive methodology, we conducted two focus groups and three individual interviews with 12 community partners, including health care providers and advocates. Thematic analysis revealed three key findings: persistent multi-level knowledge gaps about SCD, the importance of strategic partnerships between health care organizations and community groups, and specific community-identified solutions for sustainable collaboration. Results highlighted how structured partnerships between academic institutions and community organizations can address systemic barriers in SCD care delivery through knowledge sharing, resource access, and coordinated screening protocols, informing practical strategies for implementing sustainable improvements in care coordination.

Indexed as

Academic Medical CentersAnemia, Sickle CellCommunity-Institutional RelationsChildFemaleFocus GroupsHumansMaleQualitative Researchcommunity-based rehabilitationpediatricsqualitative research

Identifiers

PMID41310992
PMCPMC13088172

What OpenQuestion holds

Textmetadata
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Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.