Evidence map›Paper›PMID 41302586›Full record

ArticleInternational journal of environmental research and public health2025

Using Citizen Science to Address Out-of-Pocket Healthcare Expenditure with Aboriginal Communities in the Far West of South Australia: A Protocol.

Courtney Ryder, Ray Mahoney, Patrick Sharpe, Georga Sallows, Karla Canuto, Andrew Goodman, Julieann Coombes, Odette Pearson, Jaquelyne T Hughes, Marlien Varnfield and 8 more

Abstract read
PubMed Full text at PMC Publisher
In one paragraph

Article in International journal of environmental research and public health, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

18 authors.

Courtney RyderFlinders Health and Medical Research Institute, College of Medicine and Public Health, Flinders University, Kaurna Yerta, Adelaide 5000, Australia.ORCID 0000-0001-6511-1965
Ray MahoneyCommonwealth Scientific Industrial Research Organisations, Turrbal and Yuggera, Brisbane 4000, Australia.ORCID 0000-0002-6183-4071
Patrick SharpeFar West Community Partnerships, Kokatha, Mirning and Wirangu Country, Ceduna 5690, Australia.ORCID 0009-0000-8657-5793
Georga SallowsFlinders Health and Medical Research Institute, College of Medicine and Public Health, Flinders University, Kaurna Yerta, Adelaide 5000, Australia.
Karla CanutoFlinders Health and Medical Research Institute, College of Medicine and Public Health, Flinders University, Kaurna Yerta, Adelaide 5000, Australia.ORCID 0000-0001-6184-8249
Andrew GoodmanCommonwealth Scientific Industrial Research Organisations, Turrbal and Yuggera, Brisbane 4000, Australia.ORCID 0000-0002-0385-1084
Julieann CoombesThe George Institute for Global Health, University of New South Wales, Gadigal, Sydney 2000, Australia.ORCID 0000-0001-7212-8693
Odette PearsonWardliparingga, South Australian Health and Medical Research Institute, Kaurna Yerta, Adelaide 5000, Australia.ORCID 0000-0001-9877-6509
Jaquelyne T HughesFlinders Health and Medical Research Institute, College of Medicine and Public Health, Flinders University, Kaurna Yerta, Adelaide 5000, Australia.ORCID 0000-0002-1867-4156
Marlien VarnfieldCommonwealth Scientific Industrial Research Organisations, Turrbal and Yuggera, Brisbane 4000, Australia.ORCID 0000-0003-4848-0181
Candice OsterCollege of Nursing and Health Sciences, Flinders University, Kaurna Yerta, Adelaide 5000, Australia.ORCID 0000-0002-8214-3704
Jonathan KarnonFlinders Health and Medical Research Institute, College of Medicine and Public Health, Flinders University, Kaurna Yerta, Adelaide 5000, Australia.
Claire DrummondFlinders Health and Medical Research Institute, College of Medicine and Public Health, Flinders University, Kaurna Yerta, Adelaide 5000, Australia.ORCID 0000-0002-0737-6567
James A SmithFlinders Health and Medical Research Institute, College of Medicine and Public Health, Flinders University, Kaurna Yerta, Adelaide 5000, Australia.
Shanti Omodei-JamesFlinders Health and Medical Research Institute, College of Medicine and Public Health, Flinders University, Kaurna Yerta, Adelaide 5000, Australia.ORCID 0009-0008-3502-6557
Lavender OtienoFlinders Health and Medical Research Institute, College of Medicine and Public Health, Flinders University, Kaurna Yerta, Adelaide 5000, Australia.
Ali SoltaniFlinders Health and Medical Research Institute, College of Medicine and Public Health, Flinders University, Kaurna Yerta, Adelaide 5000, Australia.
Billie BonevskiFlinders Health and Medical Research Institute, College of Medicine and Public Health, Flinders University, Kaurna Yerta, Adelaide 5000, Australia.

Funding

Medical Research Future Fund 2029047National Health and Medical Research Centre EL1 - 2017719
6 · The paper itself

Abstract

Out-of-pocket health expenditure (OOPHE) significantly impacts people with chronic and complex diseases (CCDs) and injuries. Aboriginal communities experience a higher burden of CCDs and injury, along with greater OOPHE inequities. This project aims to develop and implement a social prescribing digital platform (Web App) to reduce OOPHE. It is grounded in citizen science approaches that value the lived experience and knowledge of Aboriginal people in shaping solutions. The project uses a citizen science methodology adapted for these communities, using knowledge interface methodology to weave together Indigenous and Western knowledges. Research methods (Indigenous, quantitative, qualitative) explore the relational nature of OOPHE risks and protective factors through co-design and workshops with Aboriginal participants to develop the Web App. A community-centric developmental evaluation guides the trial and refinement of the platform, allowing for ongoing learning and adaptation. Process measures inform a national scale-up and evaluation framework. Addressing OOPHE is essential to improving health and wellbeing for Aboriginal and Torres Strait Islander individuals and families living with or at risk of CCDs. This initiative aims to reduce the impact of OOPHE through digital social prescribing, there by connecting people with essential community services to access healthcare, offering a scalable approach to addressing health inequities nationwide.

Indexed as

Citizen ScienceHealth ExpendituresHealth Services, IndigenousHumansSouth AustraliaAboriginal and Torres Strait Islandercitizen sciencecommunity engagementmixed methodsout-of-pocket health expenditureWeb App

Identifiers

PMID41302586
PMCPMC12652995

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.