Evidence map›Paper›PMID 41299201›Full record

SynthesisScandinavian journal of caring sciences2025

A Systematic Review on Children's Participation in Healthcare From a Child's Perspective.

Merja Hietanen, Catarina Nahlén Bose, Anna Stålberg, Jayanth Raghothama, Sebastiaan Meijer

Abstract readSystematic Review
In one paragraph

Synthesis in Scandinavian journal of caring sciences, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 9 papers, 1 of them a synthesis that pooled it.

0numbers the graph read from it
0cells of the map it votes in
9citing papers in PubMed, 1 pooled it
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

9 citing papers in PubMed, 1 synthesis or guideline pooled it.

  1. Pooled it
  2. When the Child Is Not Heard: Children's Rights and Epistemic Injustice in Paediatric Nursing Practice.Nursing philosophy : an international journal for healthcare professionals · 2026
    Article
  3. Article
  4. Article
  5. Article
  6. Review
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

5 authors.

Merja HietanenKTH Royal Institute of Technology, Stockholm, Sweden.ORCID https://orcid.org/0000-0003-1168-8181
Catarina Nahlén BoseSwedish Red Cross University, Huddinge, Sweden.ORCID https://orcid.org/0000-0002-1139-9489
Anna StålbergKarolinska Institute, Astrid Lindgren's Children's Hospital, Solna, Sweden.ORCID https://orcid.org/0000-0002-5254-6983
Jayanth RaghothamaKTH Royal Institute of Technology, Stockholm, Sweden.ORCID https://orcid.org/0000-0002-3416-4535
Sebastiaan MeijerKTH Royal Institute of Technology, Stockholm, Sweden.ORCID https://orcid.org/0000-0003-1126-3781

Funding

Swedish Red Cross University
6 · The paper itself

Abstract

backgroundChildren have a right to express their opinion on all matters concerning them. For children to be seen as actors in healthcare situations, both the child perspective and the child's perspective are needed.

aimTo explore child participation in healthcare from the child's perspective through the following questions: Question 1: What is considered participation in healthcare among children aged 3-12 years? Question 2: What factors hinder and promote child participation in healthcare?

methodsSystematic review reported following PRISMA guidelines. Database search was conducted in MEDLINE, Cumulative Index to Nursing and Allied Health Literature and Web of Science Core Collection, and 28 studies were included in the review. The data were analysed using interpretive data synthesis.

resultsSix themes were identified: Question 1: 1 being able to decide how to act in the situation, 2 communicating with health professionals, 3 being adequately informed, 4 being allowed to make decisions; Question 2: 5 unfamiliar venues, parental obstruction and children's needs not being considered and 6 security, comfort and space.

conclusionChild participation in healthcare depends on their perception of the situation and opportunities created for their influence. Decision-making on simple practical matters offers meaningful opportunities to acquire and refine decision-making skills and these decisions are therefore developmentally significant. This review identified a gap in knowledge on pre-school-aged children's preferences in participation in healthcare situations. IMPLICATIONS FOR CARE PRACTICES: Children should be recognised as unique individuals and asked about their preferences for participation in healthcare situations. They should be handed over a degree of power, as much as they are able and willing to take. Nurses have a central role in facilitating and encouraging participation by listening to and respecting children's views. Digital communication tools are one way to implement child-centred care and increase children's participation, but more research is needed. REPORTING

methodThis systematic review was conducted and reported following the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) methodology. PATIENT OR PUBLIC CONTRIBUTION: No Patient or Public Contribution.

Indexed as

Decision MakingPatient ParticipationChildChild, PreschoolFemaleHumansMalechildchild participationchild's perspectivedecision‐makinghealthcareliterature review

Identifiers

PMID41299201
PMCPMC12657683

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.