Evidence map›Paper›PMID 41298011›Full record

ReviewBreast (Edinburgh, Scotland)2025

Collecting high-quality data for advanced breast cancer: a global expert review and call-to-action for 2025-2035 (Goal 2).

Vicki Durston, Charlotte E Coles, Adele Gautier, Andrea L Smith, Alexandra Lewis, Georgia Attfield, Fatima Cardoso

Abstract readReview
In one paragraph

Review in Breast (Edinburgh, Scotland), 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Vicki DurstonBreast Cancer Network Australia (BCNA), Melbourne, Australia.
Charlotte E ColesDepartment of Oncology, University of Cambridge, Cambridge, United Kingdom.
Adele GautierBreast Cancer Foundation NZ, Auckland, New Zealand.
Andrea L SmithThe Daffodil Centre, University of Sydney, a Joint Venture with Cancer Council NSW, Australia.
Alexandra LewisVML Health, London, United Kingdom.
Georgia AttfieldVML Health, London, United Kingdom.
Fatima CardosoAdvanced Breast Cancer (ABC) Global Alliance, Lisbon, Portugal. Electronic address: fcardoso@abcglobalalliance.org.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

The systematic collection and analysis of high-quality advanced breast cancer (ABC) data is necessary to advance understanding, optimize care, and improve patient outcomes. High-quality data enables understanding of treatment effectiveness, thereby facilitating the development of innovative therapies. ABC data may also help to counter stigma, by demonstrating that many living with the disease continue to contribute meaningfully to society. Data is an essential tool in highlighting global inequities and advocating to overcome them, and prevalence data is key to determining the burden of ABC worldwide, informing healthcare policies and investment in ABC care. This manuscript reviews global efforts to improve the collection and analysis of ABC data over the past decade. It highlights the advances and persistent challenges to high-quality data collection and proposes actions for the decade ahead. It summarizes research conducted for the ABC Global Alliance's Global Decade Report 2.0. The main findings are: a) New methodologies yield more accurate estimates of the number of people with ABC; b) Data linkage initiatives reveal ABC prevalence far higher than earlier projections; c) ABC-focused registries have advanced data collection globally over the decade; d) High-quality ABC data has been shown to drive treatment access and policy change; e) Persistent gaps in recurrence data and registries remain. The findings from the ABC Global Alliance's Global Decade Report 2.0 have informed the development of a new ABC Global Charter. The ABC Global Charter 2.0 defines ten new achievable and measurable goals for the decade 2025-2035, aiming at improving the lives of people living with ABC worldwide.

Indexed as

Breast NeoplasmsData CollectionFemaleGlobal HealthGoalsHumansRegistriesAdvanced breast cancerCancer registriesData collectionHigh-quality dataMetastatic breast cancer

Identifiers

PMID41298011
PMCPMC12683120

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.