Evidence map›Paper›PMID 41294271›Full record

ArticleJournal of the American Geriatrics Society2026

Patient Preferences for Dementia Interventions: A Scoping Review With a Systematic Review of Medications and Choice-Based Methods.

Ravi Gupta, Shanshan Lin, Michael J DiStefano, Hyun Yi Jacqualine Woo, Emily Mao, Renee Wilson, Halima Amjad, Emmanuel F Drabo, Jodi B Segal

Abstract readScoping Review
PubMed Full text at PMC Publisher
In one paragraph

Article in Journal of the American Geriatrics Society, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

0numbers the graph read from it
0cells of the map it votes in
0citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

0 citing papers in PubMed.

No citing paper in PubMed yet.

4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

9 authors.

Ravi GuptaDivision of General Internal Medicine, Johns Hopkin School of Medicine, Baltimore, Maryland, USA.ORCID 0000-0001-5902-6414
Shanshan LinDivision of General Internal Medicine, Johns Hopkin School of Medicine, Baltimore, Maryland, USA.
Michael J DiStefanoSkaggs School of Pharmacy and Pharmaceutical Sciences, University of Colorado Anschutz Medical Campus, Aurora, Colorado, USA.
Hyun Yi Jacqualine WooDepartment of Epidemiology, Johns Hopkins University Bloomberg School of Public Health, Baltimore, Maryland, USA.
Emily MaoKrieger School of Arts and Sciences, Johns Hopkins University, Baltimore, Maryland, USA.
Renee WilsonDepartment of Health Policy and Management, Johns Hopkins Bloomberg School of Public Health, Baltimore, Maryland, USA.
Halima AmjadDivision of Geriatric Medicine and Gerontology, Johns Hopkin School of Medicine, Baltimore, Maryland, USA.
Emmanuel F DraboDepartment of Health Policy and Management, Johns Hopkins Bloomberg School of Public Health, Baltimore, Maryland, USA.ORCID 0000-0001-7470-4391
Jodi B SegalDivision of General Internal Medicine, Johns Hopkin School of Medicine, Baltimore, Maryland, USA.

Funding

Using the generalized risk-adjusted cost-effectiveness (GRACE) model to advance an efficient and fair use of novel treatments for Alzheimer’s Disease and Related DementiasR33AG088961 · NIA · JOHNS HOPKINS UNIVERSITY · PI JODI B. SEGAL · 2025 to 2026
$978k
Improving Post-Diagnosis Dementia Care in Primary CareK23AG064036 · NIA · JOHNS HOPKINS UNIVERSITY · PI AMJAD, HALIMA · 2020 to 2024
$932k
Using the generalized risk-adjusted cost-effectiveness (GRACE) model to advance health equity in use of novel treatments for Alzheimer's Disease and Related DementiasR61AG088961 · NIA · JOHNS HOPKINS UNIVERSITY · PI DRABO, EMMANUEL FULGENCE, SEGAL, JODI B. · 2024 to 2024
$322k
NIA NIH HHS 1R61AG088961-01NIA NIH HHS K23 AG064036NIA NIH HHS K23AG064036NIA NIH HHS R33 AG088961NIA NIH HHS R61 AG088961
6 · The paper itself

Abstract

backgroundDespite emerging treatment options for Alzheimer's disease and related dementias (ADRD), patient preferences for treatment and care remain poorly understood.

methodsWe searched PubMed, PsycINFO, CINAHL, and EMBASE through November 12, 2024 for studies reporting stated preferences for dementia treatment- and care-related interventions. We synthesized key findings from studies using choice-based preference elicitation methods and those addressing medication preferences.

resultsWe screened 8300 abstracts and 82 studies published between 1996 and 2024 were included. Most evaluated preferences for non-pharmacological interventions. Studies were experimental (37; 45.1%), observational (36; 43.9%), and qualitative (21; 25.6%). Six studies used choice-based preference elicitation methods and five assessed preferences for medications. Patients valued memory improvement and emotional or social support, despite highly heterogeneous data.

conclusionsThis review highlights significant gaps in the literature on treatment preferences-particularly for medications-among older adults with cognitive impairment, underscoring the need for further research, development of validated clinical tools, and appropriate methods to elicit preferences to better align interventions with patient values.

Indexed as

Alzheimer DiseaseChoice BehaviorDementiaPatient PreferenceAgedHumansADRDmedicationpatient preferencepreference elicitation methodssatisfaction

Identifiers

PMID41294271
PMCPMC13188194

What OpenQuestion holds

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.