Evidence map›Paper›PMID 41293064›Full record

ArticleJournal of market access & health policy2025

Patient Perspectives on Health Insurance Design: A Mixed-Methods Analysis.

Bridget Doherty, Kimberly Hooks, Ulrich Neumann, Wesley Peters, Steven Zona, Lisa Shea

Abstract read
In one paragraph

Article in Journal of market access & health policy, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Bridget DohertyJohnson & Johnson, Titusville, NJ 08560, USA; uneuman1@its.jnj.com (U.N.); szona@its.jnj.com (S.Z.); lshea4@its.jnj.com (L.S.).ORCID https://orcid.org/0000-0001-7437-5065
Kimberly HooksPatient Author, Powder Springs, GA 30127, USA; kimberlymhooks@gmail.com.ORCID https://orcid.org/0009-0001-1353-5499
Ulrich NeumannJohnson & Johnson, Titusville, NJ 08560, USA; uneuman1@its.jnj.com (U.N.); szona@its.jnj.com (S.Z.); lshea4@its.jnj.com (L.S.).ORCID https://orcid.org/0000-0001-8525-9334
Wesley PetersEvidera, Wilmington, NC 28401, USA; wesley.peters@evidera.com.ORCID https://orcid.org/0009-0008-8969-7524
Steven ZonaJohnson & Johnson, Titusville, NJ 08560, USA; uneuman1@its.jnj.com (U.N.); szona@its.jnj.com (S.Z.); lshea4@its.jnj.com (L.S.).ORCID https://orcid.org/0000-0002-6531-6773
Lisa SheaJohnson & Johnson, Titusville, NJ 08560, USA; uneuman1@its.jnj.com (U.N.); szona@its.jnj.com (S.Z.); lshea4@its.jnj.com (L.S.).ORCID https://orcid.org/0000-0002-3512-0083

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

There remains a persistent lack of patient-centered evidence on insurance reform and real-world experiences of patients with chronic disease. This study gathered insights around insurance design from chronic disease beneficiaries. This mixed-methods analysis comprised an online survey and virtual focus group sessions (August to December 2023) involving US residents with chronic disease and health insurance. Patients' perspectives on insurance design were explored. Survey data were analyzed descriptively. Key themes were identified from focus group transcripts and direct observations. In total, 146 patients across 15 chronic diseases completed the survey; 29 then participated in focus groups. Although most beneficiaries were satisfied with their health plan, concerns centered on prescription medication affordability due to high deductibles and cost exposure, the disproportionate effects of cost exposure based on income, and the unpredictability of out-of-pocket costs. For some, the financial burden led to financial debt, therapy abandonment, mental health issues, and/or worsening of their condition. Overall, there was broad support for policy solutions to redesign insurance and adjust cost exposure for patients with chronic disease. This research offers valuable patient insights into health insurance design in the US to ensure patients' needs are addressed.

Indexed as

cost sharinghealthcare policyinsurance reformmixed-methods researchout-of-pocket costpatient engagementpatient perspectivesutilization management

Identifiers

PMID41293064
PMCPMC12641685

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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.