Evidence map›Paper›PMID 41291467›Full record

ArticleBMC geriatrics2025

Striving for purposeful autonomy: a qualitative method to enhance autonomy measurement in older adults.

Héloïse Gobillot, Bastien Genet, Bénédicte Dieudonné, Michael Nicolas, Rebecca Haddad, Jacques Boddaert, Lorène Zerah

Abstract read
In one paragraph

Article in BMC geriatrics, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Héloïse GobillotSorbonne Université, Assistance Publique Des Hôpitaux de Paris (APHP), Département de Gériatrie, Hôpital Pitié Salpêtrière, Paris, France.ORCID 0009-0003-5689-5552
Bastien GenetSorbonne Université, Institut Pierre Louis d'Epidémiologie Et de Santé Publique, Equipe PEPITES, Département de Santé Publique, APHP, Hôpital Pitié Salpêtrière, Paris, France.
Bénédicte DieudonnéSorbonne Université, Assistance Publique Des Hôpitaux de Paris (APHP), Département de Gériatrie, Hôpital Pitié Salpêtrière, Paris, France.
Michael NicolasSorbonne Université, Assistance Publique Des Hôpitaux de Paris (APHP), Département de Gériatrie, Hôpital Pitié Salpêtrière, Paris, France.
Rebecca HaddadDépartement de Médecine Physique Et de Réadaptation, Sorbonne Université, APHP, Hôpital Rothschild, Paris, France.
Jacques BoddaertDépartement de Gériatrie, Sorbonne Université, INSERM, Institut Pierre Louis d'Epidémiologie Et de Santé Publique, Equipe PEPITES, APHP, Hôpital Pitié Salpêtrière, Paris, France.
Lorène ZerahSorbonne Université, INSERM, Institut Pierre Louis d'Epidémiologie Et de Santé Publique, Equipe PEPITES, Département de Gériatrie, APHP, Hôpital Pitié Salpêtrière, Paris, France. lorene.zerah@aphp.fr.ORCID 0000-0002-3474-2200

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

backgroundThe global aging population faces challenges in preserving autonomy because of chronic disease and frailty, affecting quality of life and health outcomes. Current autonomy assessments focus on functional aspects but fail to capture the broader concept of autonomy in older adults, showing limited sensitivity in individuals with severe loss of autonomy. This study aimed to redefine autonomy among older adults, providing a foundation for future comprehensive assessment tools in geriatrics.

methodsThis qualitative study was conducted at a university hospital in Paris from June 2023 to February 2024. A focus group of geriatric healthcare professionals discussed autonomy assessment, with analysis by grounded theory. Four individual interviews with older patients and family caregivers were conducted at home, with analysis by interpretative phenomenological analysis. The integration of these perspectives led to comprehensive models for understanding and assessing autonomy loss in older adults.

resultsHealthcare professionals reported that the Katz ADL scale was insufficient for assessing autonomy in older adults and emphasized the need for more comprehensive tools. Patients and caregivers highlighted that autonomy was often preserved through compensatory strategies until external assistance became necessary, leading to diminished decision-making capacity and eventual institutionalization. The process of autonomy loss involved a decline in functional abilities, changes in self-perception and personality traits, and a redefinition of life purpose, all of which further exacerbated autonomy reduction. Caregivers were also identified as key experts in understanding the older adult's condition.

conclusionsTo effectively assess autonomy in older adults, the focus must be on life goals and insights from caregivers. Our future tool may address this gap in clinical practice by capturing these essential aspects, ultimately enhancing quality of life in older adults.

Indexed as

Activities of Daily LivingGeriatric AssessmentPersonal AutonomyAgedAged, 80 and overCaregiversFemaleFocus GroupsHumansMaleMiddle AgedQualitative ResearchQuality of LifeAutonomyFunctional statusOlder adultsQualitativeQuality of life

Identifiers

PMID41291467
PMCPMC12648803

What OpenQuestion holds

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LicenceCC BY-NC-ND
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.