Evidence map›Paper›PMID 41289080›Full record

SynthesisThe Gerontologist2026

Mind the gap: a systematic review of barriers, facilitators, and experiences of care transitions for people living with dementia and their informal caregivers.

Leanne Greene, Jacob Brain, Paige Watkins, Aysegul Humeyra Kafadar, Serena Sabatini, Barbara Blundell, Ellen Bothe, Kristie Harper, Deborah Hersh, Claire Morrisby and 5 more

Abstract readSystematic Review
In one paragraph

Synthesis in The Gerontologist, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 7 papers.

0numbers the graph read from it
0cells of the map it votes in
7citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

7 citing papers in PubMed.

  1. Article
  2. Article
  3. Individual Matching Support in Community Dementia Care: A Reflexive Thematic Analysis of Team Orange in Sapporo City.Psychogeriatrics : the official journal of the Japanese Psychogeriatric Society · 2026
    Article
  4. Article
  5. Article
  6. Article
  7. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

15 authors.

Leanne GreeneCurtin enAble Institute, Faculty of Health Sciences, Curtin University, Bentley, Perth, Western Australia, Australia.ORCID 0000-0002-5383-4362
Jacob BrainInstitute of Mental Health, School of Medicine, University of Nottingham, Nottingham, United Kingdom.
Paige WatkinsCurtin enAble Institute, Faculty of Health Sciences, Curtin University, Bentley, Perth, Western Australia, Australia.
Aysegul Humeyra KafadarInstitute of Mental Health, School of Medicine, University of Nottingham, Nottingham, United Kingdom.
Serena SabatiniCurtin enAble Institute, Faculty of Health Sciences, Curtin University, Bentley, Perth, Western Australia, Australia.ORCID 0000-0002-3618-6949
Barbara BlundellCurtin enAble Institute, Faculty of Health Sciences, Curtin University, Bentley, Perth, Western Australia, Australia.
Ellen BotheCurtin enAble Institute, Faculty of Health Sciences, Curtin University, Bentley, Perth, Western Australia, Australia.
Kristie HarperCurtin enAble Institute, Faculty of Health Sciences, Curtin University, Bentley, Perth, Western Australia, Australia.
Deborah HershCurtin enAble Institute, Faculty of Health Sciences, Curtin University, Bentley, Perth, Western Australia, Australia.
Claire MorrisbyCurtin enAble Institute, Faculty of Health Sciences, Curtin University, Bentley, Perth, Western Australia, Australia.
Bronwyn MyersCurtin enAble Institute, Faculty of Health Sciences, Curtin University, Bentley, Perth, Western Australia, Australia.
Andrew StaffordCurtin enAble Institute, Faculty of Health Sciences, Curtin University, Bentley, Perth, Western Australia, Australia.
Eugene Y H TangPopulation Health Sciences Institute, Newcastle University, Newcastle, United Kingdom.
Blossom C M StephanCurtin enAble Institute, Faculty of Health Sciences, Curtin University, Bentley, Perth, Western Australia, Australia.
Elissa BurtonCurtin enAble Institute, Faculty of Health Sciences, Curtin University, Bentley, Perth, Western Australia, Australia.

Funding

enAble InstituteNational Health and Medical Research Council (NHMRC) Investigator Grant for Associate Professor Burton GNT1174739
6 · The paper itself

Abstract

BACKGROUND AND

objectivesCare transitions for people living with dementia are critical periods requiring coordinated, person-centered support. Effective transitions can reduce caregiver burden, prevent adverse outcomes, and improve care quality. However, the barriers, facilitators, and lived experiences during transitions remain poorly understood. This systematic review synthesizes evidence on these factors from the perspectives of people with dementia and their informal caregivers. RESEARCH DESIGN AND

methodsA comprehensive search across MEDLINE, CINAHL, PsycINFO, ProQuest, and Web of Science identified 67 eligible English-language studies published from 2018 to 2023. Quality appraisal used Joanna Briggs Institute tools. The protocol was registered on PROSPERO: CRD42023452669.

resultsFour themes captured the barriers, facilitators, and experiences shaping care transitions for people with dementia and their caregivers. Systemic influences included fragmented governance, funding and policy inconsistencies, and structural challenges in care coordination and delivery, mitigated by proactive planning and integrated care. Health and social care workforce factors highlighted gaps in dementia training, staffing, and communication, with empathetic, informed staff improving transitions. Emotions and decision making reflected caregiver burden, uncertainty, and advocacy, eased by early guidance and peer support. Cultural, social and situational influences showed how values, socioeconomic status, and rurality affected transition choices, underscoring the need for culturally sensitive, person-centered support. DISCUSSION AND IMPLICATIONS: Care transitions remain complex, shaped by systemic, workforce, emotional, and cultural factors. Addressing inequities and coordination gaps is critical for more integrated transitional care. Strengthening dementia-specific training, home-based care models, and culturally responsive communication may improve continuity, person-centeredness, and caregiver support.

Indexed as

CaregiversDementiaTransitional CareHumansCaregiversPatient-centered carePatient dischargePatient transferTerminal care

Identifiers

PMID41289080
PMCPMC12854086

What OpenQuestion holds

Textmetadata
LicenceCC BY
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.