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ArticleHealth expectations : an international journal of public participation in health care and health policy2025

'Co-Production Is Caring': Young People's Reflections on Responsible and Dialogic Co-Production in Youth Mental Health.

Josimar Antônio de Alcântara Mendes, Ayan Mahamud, Sarah Doherty, Mathijs Lucassen, Joanna Lockwood, Ellen Townsend, Chris Hollis, Marina Jirotka

Abstract read
In one paragraph

Article in Health expectations : an international journal of public participation in health care and health policy, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 4 papers.

0numbers the graph read from it
0cells of the map it votes in
4citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

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Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

4 citing papers in PubMed.

  1. Article
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  4. 'Co-Production Is Caring': Young People's Reflections on Responsible and Dialogic Co-Production in Youth Mental Health.Health expectations : an international journal of public participation in health care and health policy · 2025
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4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

8 authors.

Josimar Antônio de Alcântara MendesResponsible Technology Institute, Department of Computer Science, University of Oxford, Oxford, UK.ORCID https://orcid.org/0000-0001-8230-1998
Ayan MahamudSprouting Minds (Young People Advisory Group-Digital Youth Programme), Queen's Medical Centre, University of Nottingham, Nottingham, UK.
Sarah DohertySprouting Minds (Young People Advisory Group-Digital Youth Programme), Queen's Medical Centre, University of Nottingham, Nottingham, UK.
Mathijs LucassenNorthampton Square, City St George's, University of London, London, UK.ORCID https://orcid.org/0000-0001-6958-3468
Joanna LockwoodQueen's Medical Centre, University of Nottingham, Nottingham, UK.
Ellen TownsendQueen's Medical Centre, University of Nottingham, Nottingham, UK.
Chris HollisQueen's Medical Centre, University of Nottingham, Nottingham, UK.
Marina JirotkaResponsible Technology Institute, Department of Computer Science, University of Oxford, Oxford, UK.

Funding

The authors acknowledge the support of the UK Research and Innovation (UKRI) Digital Youth Programme award [MRC project reference MR/W002450/1], which is part of the AHRC/ESRC/MRC Adolescence, Mental Health and the Developing Mind programme.
6 · The paper itself

Abstract

backgroundWhile co-production is increasingly emphasised in youth mental health research, few studies have explored how young people themselves conceptualise and evaluate responsible and dialogic co-production. Understanding young people's perspectives is essential to ensure that participation is meaningful and protective, rather than tokenistic or exploitative. This paper offers a retrospective reflection on a 3-year UK youth mental health programme that embedded youth involvement and co-production from the outset, at multiple levels (research participation, advisory and leadership).

objectiveThis study examines how young people involved in a UK youth mental health research articulate, from their own perspective, what counts as 'meaningful co-production', centring its responsible, relational and dialogic dimensions.

designA Qualitative Secondary Analysis was undertaken, applying Reflexive Thematic Analysis to explore patterns and meanings in participant accounts. SETTING AND

participantsData comprised responses from five young people (three females and two males; M = 21 years, SD = 2.74) via an online open-ended survey, and a focus group with eight young people (seven females and one male; M = 25.63 years, SD = 3.03). All participants had lived experience and were under 24 years old when they began their involvement in the youth mental health research programme on which this study is based.

resultsTwo central themes emerged: (1) 'We just want to be cared about': Co-production is caring and (2) 'Please, show up as a person, not as a "researcher"': Co-production as a dialogic process. Young people emphasised that meaningful co-production, in youth mental health, is relational and affective (i.e., rooted in emotional care, mutual respect, flexibility and dialogue) and that the living experience of mental health is continuous and demands sensitivity. DISCUSSION: These insights challenge procedural or ritualistic approaches to participation. Instead, they foreground care, reflexivity, power sharing and researcher presence as ethical prerequisites of co-production. The results align with Responsible Research and Innovation (RRI) principles, highlighting the need to embed structural supports for emotional safety and relational engagement from the outset.

conclusionsMeaningful co-production in youth mental health research requires embedding relational ethics into design and practice, ensuring young people are engaged as whole persons and partners. This model moves beyond procedural inclusion towards genuinely participatory research. PATIENT OR PUBLIC CONTRIBUTION: Young people with lived experience co-designed the study materials, co-facilitated the focus group, contributed to the interpretation and co-authored the manuscript-ensuring that their perspectives are central to the study. Young people with lived experience of mental health were central to this study. Members of the programme's Young People's Advisory Group (YPAG) contributed to the design of the survey and focus group materials, ensuring they were youth-friendly and relevant. Two YPAG members co-facilitated the focus group alongside the first author, actively shaping the data collection process. Their insights and perspectives also informed the interpretation of the data, particularly in refining how themes captured relational and dialogic aspects of co-production. Additionally, these two YPAG members are co-authors of the manuscript, contributing to the conceptual framing, reflexivity and clarity of the results, ensuring that the work authentically reflects youth perspectives.

Indexed as

EmpathyMental HealthMental Health ServicesAdolescentAdultFemaleFocus GroupsHumansMaleQualitative ResearchRetrospective StudiesUnited KingdomYoung Adultco‐productiondialogicResponsible Research and Innovationyouth mental health

Identifiers

PMID41288982
PMCPMC12646113

What OpenQuestion holds

Textmetadata
LicenceCC BY
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.