Evidence map›Paper›PMID 41286349›Full record

ReviewSpinal cord2026

Development of the international spinal cord injury psychological functioning basic data set.

Marcel W M Post, Denise G Tate, Sara Ahmed, Susan J Bartlett, Susan Charlifue, Jennifer Coker, Ashley Craig, Stanley Ducharme, Jane Duff, Allen W Heinemann and 5 more

Abstract readReview
PubMed Publisher
In one paragraph

Review in Spinal cord, 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

15 authors.

Marcel W M PostCenter of Excellence for Rehabilitation Medicine, UMC Utrecht Brain Center, University Medical Center Utrecht and De Hoogstraat Rehabilitation, Utrecht, the Netherlands. m.post@dehoogstraat.nl.ORCID 0000-0002-2205-9404
Denise G TateDepartment of Physical Medicine and Rehabilitation, University of Michigan, Ann Arbor, MI, USA.ORCID 0000-0001-5210-3704
Sara AhmedFaculty of Medicine, McGill University, Montreal, QC, Canada.
Susan J BartlettFaculty of Medicine, McGill University, Montreal, QC, Canada.ORCID 0000-0001-9755-2490
Susan CharlifueCraig Hospital, Englewood, CO, USA.
Jennifer CokerCraig Hospital, Englewood, CO, USA.ORCID 0000-0003-0760-7449
Ashley CraigJohn Walsh Centre for Rehabilitation Research, University of Sydney, Sydney, NSW, Australia.ORCID 0000-0001-7647-7604
Stanley DucharmeBoston Medical Center and Boston University School of Medicine, Boston, MA, USA.
Jane DuffNational Spinal Injuries Centre, Stoke Mandeville Hospital, Buckinghamshire Healthcare NHS Trust, Aylesbury, UK.ORCID 0000-0003-1893-8593
Allen W HeinemannFeinberg School of Medicine, Northwestern University and Shirley Ryan AbilityLab, Chicago, IL, USA.ORCID 0000-0003-2782-7326
Duygu KuzuDepartment of Physical Medicine and Rehabilitation, University of Michigan, Ann Arbor, MI, USA.
Kimberley R MondenDepartment of Rehabilitation Medicine, University of Minnesota Medical School, Minneapolis, MN, USA.
Dan RoheDepartment of Psychiatry and Psychology, Mayo Clinic, Rochester, MN, USA.ORCID 0009-0001-6875-5069
Tijn van DiemenDepartment of Spinal Cord Injury, Sint Maartenskliniek, Nijmegen, the Netherlands.ORCID 0000-0002-8772-4962
Kathy ZebrackiShriners Children's Chicago, Chicago, IL, USA.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

STUDY

designConsensus exercise, narrative review.

objectivesTo create an International Spinal Cord Injury Psychological Functioning Basic Data Set (PSYCHBDS).

settingInternational working group.

methodsOnline meetings and email communications throughout 2020-2022. The authors reviewed measures used by SCI rehabilitation psychologists and reported in the literature. Selected measures and their psychometric properties were described. Consensus was reached on the measures and other data elements to include in the PSYCHBDS. The draft-PSYCHBDS was further reviewed by members of the International SCI Data Sets Committee, the American Spinal Injury Association (ASIA) Board, the International Spinal Cord Society (ISCoS) Executive and Scientific Committees, individual reviewers and societies, and posted on the ASIA and ISCoS websites for 1 month to elicit comments before final approval by ASIA and ISCoS.

resultsThe group agreed to restrict the scope of the PSYCHBDS to the domains of anxiety and depressed mood and to use the 2-item versions of the Patient Health Questionnaire (PHQ) and the Generalized Anxiety Disorder (GAD). The PSYCHBDS consists of six standard and three optional data elements: date of data collection, professional background of data collector (optional), presence of psychological disorders before the onset of SCI, administration mode, PHQ-2 score, PHQ-9 score (optional), GAD-2 score, GAD-7 score (optional), and therapy for current psychological disorders. A data collection form and scoring instructions were developed.

conclusionsAn international working group of experts achieved consensus on a data set to collect basic information on psychological factors and recommends its use in SCI/D rehabilitation and research.

Indexed as

Spinal Cord InjuriesConsensusHumansPsychometrics

Identifiers

What OpenQuestion holds

Textmetadata
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.