Evidence map›Paper›PMID 41282987›Full record

ArticlePeerJ2025

Cross-cultural adaptation and psychometric validation of the Chinese quality-of-life questionnaire for patients with systemic sclerosis.

Yinfeng Hu, Wenjie Zhong, Liqiong Zhou

Abstract readValidation Study
In one paragraph

Article in PeerJ, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.

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5 · Who and what money

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3 authors.

Yinfeng HuDepartment of Rheumatology and Immunology, South China Hospital, Medical School, Shenzhen University, Shenzhen, Guangdong, China.
Wenjie ZhongDepartment of Rheumatology and Immunology, The First Affiliated Hospital of Henan University of Science and Technology, Luoyang, Henan, China.
Liqiong ZhouDepartment of Rheumatology and Immunology, South China Hospital, Medical School, Shenzhen University, Shenzhen, Guangdong, China.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Background: Patients with systemic sclerosis (SSc) frequently experience symptoms such as pain, fatigue, and functional impairments, leading to a significant decline in their quality of life (QoL). Accurately evaluating the QoL of SSc patients is crucial for developing personalized treatment plans and enhancing prognosis. The Systemic Sclerosis Quality of Life Questionnaire (SScQoL), an internationally recognized SSc-specific tool, is commonly used for QoL assessment. However, this questionnaire has not undergone cross-cultural adaptation in China, and its reliability and validity require further validation. Objectives: To localize the Systemic Sclerosis Quality of Life Questionnaire (SScQoL) into Chinese and assess its reliability and validity. Methods: Following the principles of scale introduction, the Beaton model was employed to translate and back-translate the English version. The scale underwent cross-cultural adaptation through expert consultation, resulting in the Chinese version of the SScQoL test. From August 2023 to December 2024, a convenience sampling method was used to recruit 160 patients with systemic sclerosis from two hospitals for questionnaire surveys to evaluate questionnaire reliability and validity. Results: SScQoL comprises five dimensions and 29 items. The content validity index (CVI) at the item level ranges from 0.83 to 1.00, and the CVI at the scale level is 0.97. Exploratory factor analysis identified five common factors, with a cumulative variance contribution rate of 65.761%. The Cronbach's α coefficient for the total scale is 0.922, and the Cronbach's α coefficients for the five dimensions range from 0.756 to 0.942. The test-retest reliability for the total scale is 0.969; for the five dimensions, it ranges from 0.710 to 0.961. Conclusions: SScQoL is a reliable and effective tool for evaluating patients' quality of life with systemic sclerosis. This tool can support nurses and researchers and help them formulate targeted strategies, thereby significantly improving patients' quality of life with systemic sclerosis.

Indexed as

PsychometricsQuality of LifeScleroderma, SystemicAdultAgedChinaCross-Cultural ComparisonFemaleHumansMaleMiddle AgedReproducibility of ResultsSurveys and QuestionnairesTranslationsCross-cultural adaptationPsychometric evaluationQuality of lifeQuestionnaireScaleSystemic sclerosis

Identifiers

PMID41282987
PMCPMC12640127

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.