Evidence map›Paper›PMID 41280751›Full record

ArticleJournal of patient experience2025

Championing Ethical Engagement of Youth in Healthcare: A Reflective Commentary.

Jeanna Pillainayagam, Alexa Petta, Brooke Allemang

Abstract read
In one paragraph

Article in Journal of patient experience, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. The Many Faces of Engagement: A Scoping Review of Paediatric Patient and Family Engagement in Clinical Care, Education and Research.Health expectations : an international journal of public participation in health care and health policy · 2026
    Article
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

3 authors.

Jeanna PillainayagamFaculty of Health Sciences, McMaster University, Hamilton, ON, Canada.
Alexa PettaOffice of Patient, Family, and Community Engagement, The Hospital for Sick Children, Toronto, ON, Canada.
Brooke AllemangOffice of Patient, Family, and Community Engagement, The Hospital for Sick Children, Toronto, ON, Canada.ORCID https://orcid.org/0000-0003-0634-4472

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Engaging youth as advisors in health research and service delivery is a rapidly growing practice, yet there are no consistent frameworks or ethical guidelines available to ensure the protection of this vulnerable population from unintended harm. This commentary aims to bring awareness to 3 ethical complexities observed in the authors' own participation within the field of youth engagement in health research and service delivery: (1) a lack of standardized safeguards for youth advisors, (2) a lack of accountability for the safety of youth advisors, and (3) the need to cater engagement activities to the development and well-being of youth. Further, recommendations for meaningfully engaging youth advisors are proposed with the aim of ensuring their safety and enabling opportunities to drive impactful outcomes in health care.

Indexed as

patient engagementpatient perspectivespediatricsyouth

Identifiers

PMID41280751
PMCPMC12638674

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.