ArticlePediatric transplantation2025
Decision Making in Pediatric Heart Failure and Transplant: A Qualitative Analysis of Parental Decision Making.
Article in Pediatric transplantation, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.
What it found
Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.
The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.
The trial behind it
Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.
Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.
Who cites it
1 citing paper in PubMed.
- Decision Making in Pediatric Heart Failure and Transplant: A Qualitative Analysis of Parental Decision Making.Pediatric transplantation · 2025Article
Corrections and comments
PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.
Authors and funding
8 authors.
Funding
Abstract
backgroundParents of children with advanced heart failure face complex, emotionally charged decisions regarding mechanical circulatory support (MCS) and heart transplantation. Understanding their informational needs and decision-making factors is crucial to optimizing their education and providing support.
methodsWe conducted a qualitative study with parents of children (< 18 years) who are listed for or who underwent heart transplantation within the past 3 years. Participants engaged in focus groups or interviews exploring informational needs, decision-making perceptions, influencing factors, and educational tool preferences. Transcripts underwent thematic coding and analysis.
resultsNineteen parents participated. Four major themes emerged: (1) Informational Needs-Parents sought medical facts from providers and valued lived experiences from like-peers for practical insights. (2) Decision Making Perception-Most viewed transplant as the only viable option; others viewed it as a genuine decision; all desired autonomy in decision making. (3) Decision Factors-Survival and quality of life were primary drivers; external stressors (financial, logistical, emotional) were seen as inevitable consequences rather than determinants. (4) Parental Distress-Emotional burden was substantial, with parents emphasizing the need for better preparation and mental health support. Parents preferred a multimodal educational tool incorporating digital and physical resources, visual aids, and customizable journey maps.
conclusionsThese findings highlight the significance of peer support groups, the role of social support in managing external stressors, the potential of decision support tools for families to clarify their goals.
Indexed as
Identifiers
What OpenQuestion holds
Registered trials
Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.