ArticleSupportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer2025
Animated videos for childhood cancer precision medicine: development and evaluation with parents and patients.
Article in Supportive care in cancer : official journal of the Multinational Association of Supportive Care in Cancer, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Not yet cited in PubMed.
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Abstract
purposePrevious research shows that families find concepts underpinning childhood cancer precision medicine challenging to understand. We developed three animated videos and then evaluated these videos' acceptability, accessibility, emotional impact, and impact on participants' understanding of precision medicine.
methodsEligible participants included adolescents and young adults with cancer (12-25 years) and parents of a child (< 25 years) with cancer who recently enrolled in a precision medicine trial. Participants evaluated the videos using a questionnaire containing validated and purpose-designed quantitative and qualitative items.
resultsTwenty-three parents and five patients participated. Over 70% of participants rated each video as 'just right' in length, pace, and amount of information. Almost all felt the videos provided useful information about the precision medicine process (n
conclusionParents and patients responded positively to the videos about precision medicine for childhood cancer and felt they would benefit other families. The videos are a potentially useful complement to written consent information and clinical discussions to support understanding of complex precision medicine concepts.
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