Evidence map›Paper›PMID 41265194›Full record

ArticleBreast (Edinburgh, Scotland)2026

The Breast International Group (BIG) Patient Partnership: Embedding meaningful patient involvement in the design and conduct of breast cancer clinical research.

Carmela Caballero, Virginie Adam, Orsolya Birta, Lydie Meheus, Judy Needham, Christine Hodgdon, Leslie Gilhams, Concepcion Biurrun, Mairead MacKenzie, Tanja Spanic and 11 more

Abstract read
In one paragraph

Article in Breast (Edinburgh, Scotland), 2026. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Review
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

21 authors.

Carmela CaballeroBreast International Group, Rue de Bretagne 20, Brussels, 1200, Belgium. Electronic address: carmela.caballero@bigagainstbc.org.
Virginie AdamBreast International Group, Rue de Bretagne 20, Brussels, 1200, Belgium.
Orsolya BirtaBreast International Group, Rue de Bretagne 20, Brussels, 1200, Belgium.
Lydie MeheusAnticancer Fund, Brusselsesteenweg 11, Meise, Belgium.
Judy NeedhamCanadian Cancer Trials Group - Chair Emeritus, British Columbia, Canada.
Christine HodgdonGRASP - Guiding Researchers & Advocates to Scientific Partnerships, Baltimore, MD, United States.
Leslie GilhamsConsumer Advisory Panel Alumni (Member, Voluntary Position), Breast Cancer Trials, Newcastle, Australia.
Concepcion BiurrunSpanish Federation of Breast Cancer Associations - FECMA, Spain.
Mairead MacKenzieTrustee, Independent Cancer Patients' Voice (ICPV), UK.
Tanja SpanicEuropa Donna Slovenia, Ljubljana, Slovenia; Europa Donna - The European Breast Cancer Coalition, Milan, Italy.
Hilary StobartTrustee, Independent Cancer Patients' Voice (ICPV), UK.
Lynda BelhadiSorbonne University, Paris, France; Europa Donna, France.
Julia MauésGRASP - Guiding Researchers & Advocates to Scientific Partnerships, Baltimore, MD, United States.
Ana CasasFundacion Actitud frente al Cáncer (AFAC), Spain; Department of Medical Oncology University Hospital Virgen del Rocío, Sevilla, Spain; SOLTI Cáncer Research Group, Spain.
Eva Schumacher-WulfMamma Mia! Breast Cancer Magazine, Maria-Hilf-Str. 15, 50677, Köln, Germany.
Carolyn StraehleBreast International Group, Rue de Bretagne 20, Brussels, 1200, Belgium.
Seamus O'ReillyCancer Trials Ireland, 123 St Stephens Green, Dublin, Ireland.
David CameronUniversity of Edinburgh and NHS, Lothian, UK.
Martine PiccartScientific Direction, Université Libre de Bruxelles (ULB), Hôpîtal Universitaire de Bruxelles (HUB), Institut Jules Bordet, Bruxelles, Belgium.
Judith BlissThe Institute of Cancer Research, Clinical Trials & Statistics Unit, London, UK.
Boon ChuaFaculty of Medicine and Health, University of New South Wales, Sydney, NSW, Australia.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

Involving those with a lived experience of the relevant condition in the design of clinical research ensures that studies address real-world needs and priorities, enabling more relevant, ethical, and impactful outcomes. In 2019, the Breast International Group (BIG) established the BIG Patient Partnership to facilitate the meaningful involvement of people affected by breast cancer in the design and conduct of its studies. The members provide a strong international patient voice in academic breast cancer research. The partnership is based on 4 pillars: foundational and ongoing training, meaningful and systematic involvement, patients as a strategic driving force in BIG's research, and promoting the value of the patients' voice in research. In this paper, we describe a model to enable performing transnational clinical research for and with patient partners. We hope to inspire organizations and people who are burdened by cancer from different cultural backgrounds to develop an interactive, engaging, and empowering process for researchers and patient partners to work together.

Indexed as

Biomedical ResearchBreast NeoplasmsPatient ParticipationResearch DesignFemaleHumansBreast cancer researchClinical researchPatient advocacyPatient involvement

Identifiers

PMID41265194
PMCPMC12670948

What OpenQuestion holds

Textmetadata
LicenceCC BY-NC-ND
Read underepoch 390

Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.