Evidence map›Paper›PMID 41263917›Full record

ArticleBMJ open2025

Barriers and facilitators to accessing services for neurodevelopmental disorders among the carers of individuals from Black, Asian and minority ethnic groups in the UK: a scoping review.

Britzer Paul Vincent, Zahra Maryam, Nasreen Ali, Matthew Bushnell, Elizabeth Elliott, Gurch Randhawa

Abstract readScoping Review
In one paragraph

Article in BMJ open, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

6 authors.

Britzer Paul VincentInstitute for Health Research, University of Bedfordshire Faculty of Health and Social Sciences, Luton, UK britzerpaul.vincentpaulraj@beds.ac.uk.ORCID http://orcid.org/0000-0001-7681-1430
Zahra MaryamInstitute for Health Research, University of Bedfordshire Faculty of Health and Social Sciences, Luton, UK.
Nasreen AliInstitute for Health Research, University of Bedfordshire Faculty of Health and Social Sciences, Luton, UK.ORCID http://orcid.org/0000-0003-2017-8482
Matthew BushnellMary Seacole Housing Association, Luton, UK.
Elizabeth ElliottLuton Borough Council, Luton, UK.
Gurch RandhawaInstitute for Health Research, University of Bedfordshire Faculty of Health and Social Sciences, Luton, UK.ORCID http://orcid.org/0000-0002-2289-5859

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

objectiveTo identify the barriers and facilitators to accessing services for neurodevelopmental disorders (NDDs) among the carers of individuals from Black, Asian and minority ethnic groups in the UK.

designA scoping review. DATA SOURCES: Seven databases: PubMed, Cochrane, MEDLINE Full Text, APA PsycINFO, Scopus, CINAHL and Web of Science were searched for relevant studies up to the end of March 2025. Titles and abstracts and, where appropriate, full-text articles were screened based on predefined inclusion and exclusion criteria. Two reviewers independently screened the 6454 studies, with data extraction carried out by two reviewers. A narrative synthesis of the findings was undertaken.

findingsA total of 15 studies were included in the review, the majority of which were qualitative (n=9; 60%). Among the Black, Asian and minority ethnic populations represented, South Asians comprised the predominant group. The review underscores that the barriers faced by Black, Asian and minority ethnic communities are multifactorial, which includes: (1) language and communication barriers, (2) cultural and religious influences, (3) stigma, (4) formal and informal support systems and (5) experience with healthcare services.

conclusionAccess to neurodevelopmental care for carers from Black, Asian and minority ethnic groups in the UK is shaped by complex, multifactorial barriers. These communities are not homogeneous, and evidence gaps make it unclear whether challenges are shared or distinct. Greater understanding is needed to inform culturally appropriate, evidence-based policy and practice. Further research is essential to address disparities and improve equitable access across all groups.

Indexed as

CaregiversHealth Services AccessibilityMinority GroupsNeurodevelopmental DisordersAsian PeopleBlack PeopleCommunication BarriersEthnicityHumansSocial StigmaUnited KingdomDevelopmental neurology & neurodisabilityReviewSystematic ReviewVulnerable Populations

Identifiers

PMID41263917
PMCPMC12636987

What OpenQuestion holds

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LicenceCC BY-NC
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Registered trials

None linked

Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.