Evidence map›Paper›PMID 41263375›Full record

ArticleCancer medicine2025

Sexual Orientation and Gender Identity Data in Oncology: Thematic Analysis From a National Qualitative Interview Study.

Beck Gold, Dana Rosenberg, Megan A Mullins, Milena E Insalaco, Edward J Miech, Charles Kamen, Mandi L Pratt-Chapman

Abstract read
In one paragraph

Article in Cancer medicine, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 2 papers.

0numbers the graph read from it
0cells of the map it votes in
2citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

2 citing papers in PubMed.

  1. Review
  2. Article
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Beck GoldDepartment of Medicine, GW Cancer Center, the George Washington University (GWU) School of Medicine and Health Sciences, Washington, DC, USA.
Dana RosenbergDepartment of Medicine, GW Cancer Center, the George Washington University (GWU) School of Medicine and Health Sciences, Washington, DC, USA.
Megan A MullinsO'Donnell School of Public Health, Simmons Comprehensive Cancer Center, University of Texas (UT) Southwestern Medical Center, Dallas, Texas, USA.ORCID https://orcid.org/0000-0003-2753-9068
Milena E InsalacoUniversity of Rochester (UR) Medical Center, Rochester, New York, USA.
Edward J MiechIndiana University School of Medicine, Department of Emergency Medicine, Indianapolis, Indiana, USA.
Charles KamenUniversity of Rochester (UR) Medical Center, Rochester, New York, USA.ORCID https://orcid.org/0000-0002-4219-4320
Mandi L Pratt-ChapmanDepartment of Medicine, GW Cancer Center, the George Washington University (GWU) School of Medicine and Health Sciences, Washington, DC, USA.ORCID https://orcid.org/0000-0002-9303-7659

Funding

NRG Oncology NCORP Research Base-BIQSFPUG1CA189867 · NCI · NRG ONCOLOGY FOUNDATION, INC. · PI Deborah Watkins Bruner, Lisa A. Kachnic · 2014 to 2026
$140.5M
American Society of Clinical OncologyNCI NIH HHS UG1 CA189867NCI NIH HHS UG1CA189867
6 · The paper itself

Abstract

importanceSexual orientation and gender identity (SOGI) data are vital, but inconsistently collected among cancer centers.

objectiveThis study aims to identify themes from a large set of interviews regarding the collection of sexual orientation and gender identity (SOGI) data in oncology practice.

settingOncology care settings in diverse geopolitical regions in the United States.

participantsSixty-two semi-structured interviews across 23 cancer centers in the United States were conducted from September 1, 2022 to August 31, 2023. Interview transcripts were transcribed and double-coded using thematic analysis and emergent coding. MAIN OUTCOMES AND MEASURES: We used inductive, open coding thematic qualitative analysis with no predetermined constructs.

resultsKey themes included: (1) barriers to SOGI data collection include stigma and bias, generational and geopolitical resistance, fragmented workflows, competing priorities and institutional inertia; (2) the importance of staff exposure to lesbian, gay, bisexual, queer, and intersex (LGBTQI) individuals in understanding SOGI's clinical relevance; and (3) structural challenges to equitable care for transgender patients, including electronic health record (EHR) limitations and billing issues. Taken together, these findings reveal a complex interplay of sociocultural, institutional, and systemic barriers that impede routine SOGI data collection in cancer care.

Indexed as

Gender IdentityMedical OncologyNeoplasmsSexual and Gender MinoritiesSexual BehaviorElectronic Health RecordsFemaleHumansInterviews as TopicMaleQualitative ResearchUnited Statesgender identityimplementationqualitativesexual orientation

Identifiers

PMID41263375
PMCPMC12631534

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.