Evidence map›Paper›PMID 41257624›Full record

ArticleBMC cancer2025

Barriers to care for newly diagnosed children with cancer from Bungoma County after an awareness campaign: insights from parental interviews and registry data.

Larissa Klootwijk, Lilian Apadet Osamong, Sally Kimaiyo, Terry A Vik, Steven van de Vijver, Gertjan Kaspers, Festus Njuguna

Abstract read
In one paragraph

Article in BMC cancer, 2025. The graph could read no effect estimate from its abstract, so it casts no vote on the map. Cited by 1 paper.

0numbers the graph read from it
0cells of the map it votes in
1citing papers in PubMed
–field-weighted citation impact
1 · What the graph read from it

What it found

Each row is one number read from the abstract, on the scale the paper reported it, with its interval. Left of the dashed line favours the treatment, right favours the comparator. Under each row is the sentence it came from. New to these charts? A ten-minute tutorial.

The abstract states no effect estimate the extractor could read, or names no intervention and outcome on the map, so this paper lights no cell and moves no belief. It is still indexed, cited and linked below.

2 · The registry

The trial behind it

Trials whose registry record cites this paper, or whose number appears in the abstract. A trial that started after this paper was published is citing it as background, not reporting it.

Neither the registry nor the abstract names a trial number. If this is a trial report, that itself is worth knowing.

3 · Its place in the literature

Who cites it

1 citing paper in PubMed.

  1. Observational
4 · The record

Corrections and comments

PubMed lists nothing against this paper. Absence here is not a guarantee, only a check that was made.

5 · Who and what money

Authors and funding

7 authors.

Larissa KlootwijkPrincess Máxima Center for Pediatric Oncology, Utrecht, The Netherlands. L.Klootwijk@prinsesmaximacentrum.nl.
Lilian Apadet OsamongEmma's Children Hospital, Amsterdam UMC, Vrije Universiteit, Amsterdam, The Netherlands.
Sally KimaiyoDepartment of Pediatrics, Indiana University School of Medicine, Indianapolis, United States of America.
Terry A VikDepartment of Pediatrics, Indiana University School of Medicine, Indianapolis, United States of America.
Steven van de VijverDepartment of Global Health, Amsterdam University Medical Center, Amsterdam, The Netherlands.
Gertjan KaspersPrincess Máxima Center for Pediatric Oncology, Utrecht, The Netherlands.
Festus NjugunaDepartment of Child Health and Pediatrics, Moi Teaching and Referral Hospital, Moi University, Eldoret, Kenya.

Funding

No grant is acknowledged in the PubMed record.

6 · The paper itself

Abstract

introductionChildren in low- and middle-income countries face barriers to timely access to cancer care. Between January and June 2023, an awareness campaign in Bungoma County, Kenya, aimed to address this issue. This study describes sociodemographic and clinical characteristics of children diagnosed with cancer after the campaign, explores health-seeking behaviors and delays, and compares cancer referrals pre- and post-campaign.

methodsParental interviews were conducted for all children newly diagnosed with cancer from Bungoma County at Moi Teaching and Referral Hospital between January 2023 and December 2024 using structured questionnaires. Hospital registry data from January 2014 to December 2024 were analyzed to compare referrals pre- and post-campaign (2014-2022 versus 2023-2024).

resultsFollowing the campaign, 30 children were diagnosed with cancer (40% female, median age 5.5 years). Diagnoses included hematological cancers (23%), solid tumors (60%), rare solid tumors (7%), and brain tumors (10%), with 57% of solid tumors presenting at advanced stages. Delays were substantial: the median patient-, physician-, diagnosis-, treatment-, health system-, and total delays were 30, 104, 114, 6, 114, and 146 days, respectively. Barriers included the use of traditional medicine, cultural beliefs, financial strain, travel costs, lack of insurance, income loss, and fear. Annual referral rate before and after the campaign (2014-2022 versus 2023-2024) showed no statistically significant difference (Chi-square test, p = 0.071; Fisher's exact test, p = 0.063).

conclusionThe campaign did not increase cancer diagnoses, highlighting ongoing barriers to timely access to childhood cancer care. Addressing these barriers is essential for improving access to childhood cancer care. Factors such as healthcare worker strikes, supply shortages, and treatment seeking at other facilities may have contributed to the lower-than-expected numbers.

Indexed as

Health Knowledge, Attitudes, PracticeHealth Services AccessibilityNeoplasmsParentsPatient Acceptance of Health CareAdolescentChildChild, PreschoolFemaleFinancial StressHumansInfantInfant, NewbornInterviews as TopicKenyaMaleAwarenessChildhood cancerLow- and middle-income countries

Identifiers

PMID41257624
PMCPMC12629032

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LicenceCC BY-NC-ND
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Registered trials

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Read under generation 80e0d062 · epoch 390. Bibliography from PubMed, PubMed Central and OpenAlex; grants from NIH RePORTER; trial links from ClinicalTrials.gov; estimates, votes and beliefs from the OpenQuestion graph.